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This Solar Powered Marvel of Engineering Lets a Person with Disabilities Earn a Living Anywhere!

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Sunny Splendor is a great piece of engineering – a solar vehicle that works as a mobile shop for people with disabilities to start up small businesses and earn a living. It was designed by Hari Vasudevan of Ostrich Mobility, and this is how it works. “I earn more than Rs. 4,000 a day now and can even think of sending my children to a good school,” says Umesh, a street vendor from Bangalore who lost both his legs in a road accident. Umesh used to work as a driver earlier but his life came to a standstill for about five years after the accident. He could not find any suitable source of income and things became increasingly difficult for his family. So he set up a small cart and started selling items like tea, coffee, bread, biscuits, and chocolates. But business was never very lucrative because he couldn’t move around with his cart and had to remain stationary at the same spot all day long. After struggling for a long time to make ends meet, Umesh received the most amazing gift a few months back. He was introduced to Sunny Splendor – a mobile shop meant for people with disabilities to run petty businesses from wherever they want.

Earning more than double of what he would make earlier, Umesh has now left hard times far behind and is extremely happy with his new shop on wheels.

[caption id="attachment_45294" align="aligncenter" width="1000"]people with disabilities Umesh at work[/caption]

Sunny Splendor was developed by Hari Vasudevan, Founder and Managing Director of Ostrich Mobility, a company that excels in manufacturing personal mobility appliances for people with disabilities.

[caption id="attachment_45296" align="aligncenter" width="800"]people with disabilities The team at Ostrich Mobility[/caption]
“Umesh was able to increase his profits only because he got the chance to roam around with his shop. If one place is less crowded he moves on to the next, and keeps moving to the more crowded areas of the city,” says Hari.
For Umesh, the best thing about Sunny Splendor is that it needs zero maintenance and customers are often attracted to his shop just to find out how it works. This adds to his business and he has some very loyal customers who are amazed by his story and keep coming back to his shop.

Hari says he was inspired to design this vehicle in 2013 when K.S. Rajanna, a differently-abled man, was appointed the State Commissioner for Persons with Disabilities in Karnataka.

people with disabilities
“When Rajanna sir became the commissioner, he visited my office to see the kind of things we manufacture. He asked me a simple question: ‘Why don’t you hire people with physical disabilities?’ I told him that we deal with heavy objects and it would be difficult to find a person with disability who would want to do this kind of work. Moreover, we are not some big corporate firm and it won’t be easy for us to change the complete infrastructure of the office building to make it suitable for differently abled people.”
But the question remained with Hari. He found himself thinking about developing a way to help people with disabilities find a source of income. “And the idea suddenly struck me – I decided to design an electric wheelchair in a way that it would work as a mobile shop to help people run small businesses,” he says.

The mobile shop is called Sunny Splendor because there is a solar panel attached to its roof, which helps charge the batteries it operates on.

people with disabilities Sunny Splendor is basically an electric wheelchair designed like a three-wheeler, with a lot of space to display the items for selling. The wheelchair’s batteries can be charged with the help of electricity as well as solar energy. Eight hours of sunlight are enough to get the vehicle fully charged, and it can run for about 45km at a speed of 15km/hr after one charge. Even those who don’t have access to electricity can use it with the help of solar charging only.

There is a joystick to control the direction in which it moves and disabled people can use the vehicle to sell all kinds of things like magazines, food, toys, vegetables, and more.

people with disabilities Sunny Splendor is available in the market for Rs. 1.5 lakh. But many people who need it the most don’t usually have the required money to make the purchase. So Hari and his team are talking to NGOs and other organizations to make it available to people with disabilities. As of now, two people in Karnataka are using the mobile shops gifted to them by Mahindra & Mahindra (as a part of the organization’s CSR activities). Three other people have received them from the Kerala government. Hari, who is 44 years old, founded Ostrich Mobility after completing his M.Tech course in product design and manufacturing. Prior to that, he did his BSc in Physics and BE in Mechanical Engineering, followed by seven years of work in the field of manufacturing automobiles.
“Engineering is my passion…I got a chance to meet many kids with disabilities during college because my final year project was related to making a device to help them walk. And after a visit to a school for children with disabilities, I decided that I will do something to help such people with whatever engineering I know. In 2005, I got four orders for wheelchairs from a school, and I decided to continue from there,” he recounts.
In 2007, Hari started Ostrich Mobility with the idea of making electric wheelchairs. Today, the company sells more than 22 products, including various electric wheelchairs, mobility scooters, hospital beds, and more. All the products are designed by Hari. Hari feels that anyone buying Sunny Splendor is actually buying a business that can grow much beyond the initial investment. However, it is difficult for someone who is poor to make that investment so Hari is looking for micro-financing companies to help people purchase the vehicle.

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Inclusive India: Country’s First Disabled-Friendly Beach Coming up in Gujarat

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India will soon get its first disabled-friendly beach. It is in Gujarat's Valsad district.

Preparations are on in full swing to make the Tithal beach disabled-friendly.

tithal 3 A 1 km beach stretch will have disabled-friendly food courts, washrooms and entertainment area, in the first phase of the project.  The facilities will be designed in such a way that disabled people can access them without any assistance. The disabled will also be able to access the water directly. This stretch is expected to be opened by June.

In the second phase, a 2-km-long stretch will be made disabled-friendly.

tithal beach 1 Tenders were recently floated by the government to develop facilities like ramps, railings, low-height food counters, detailed sign boards, etc. The idea for the project stemmed from the Union Government's Accessible India campaign. Valsad collector Vikrant Pandey told Times of India, "It will be a first-of-its-kind beach in India. The disabled visiting the beach will not feel discriminated against in any way."

Thousands of tourists visit Tithal beach every week. However, there are no facilities there for the disabled at present.

tithal 4 A similar initiative was launched in Goa last year. Though the campaign was a temporary one, suggestions were invited from people on making beaches more accessible to the disabled. There are many accessible beaches for disabled people in the world. All of them have ramps leading up to the water, provision for wheelchairs, railings, and so on.
Photos source: gujarattourism.com
Featured image source: amsvans.com

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When Her Daughter Was Diagnosed with Cerebral Palsy, Maria Did Not Lose Hope. She Did This Instead.

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When Maria Josephine’s 5-month-old daughter Priya was diagnosed with cerebral palsy, this mother took on the challenge of giving her daughter an independent life. But that is not all she did – over the years she became a certified special educator to help other kids with this condition and created awareness among hundreds of parents, hospitals, anganwadi workers, and more.
“What is the purpose of my life? Everyone faces this question. But when it comes to children with disabilities, society, including the parents of these kids, thinks they have no purpose whatsoever. I have always believed that no matter what the disability, every child has an aim. Priya was given to me with a purpose. I have helped so many special children and their parents, and it is all because of Priya,” says Maria Josephine, the mother of a 40-year-old woman with cerebral palsy.

Maria’s daughter Priya was diagnosed with cerebral palsy when she was only five months old. But instead of looking at her condition as a challenge, Maria decided to dedicate her life to special education and has worked in this field for about 30 years now.

maria1 She has helped many other parents like herself, while also building a beautiful and independent life for Priya.
“Forty years ago it was very difficult to find proper services for children with special needs, especially in north Madras. As parents, we had to run from pillar to post to find doctors and experts for her training,” remembers the 62-year-old.
Maria started taking Priya to The Spastics Society of Tamil Nadu (SPASTN), an organization that empowers people with disabilities through education, training and employment. As a mother who was determined to create a better life for her daughter, Maria was not very satisfied with the kind of services provided. She kept looking for other organizations that could help and soon came to know about special education – a practice of educating students with special needs in a way that addresses their individual differences and requirements. She joined Bala Vihar, a special education school in Chennai, for a one year training program, and became a certified special educator.
“By the time I became a professional and entered this field, Priya was seven years old. I had missed out on the critical development years of my daughter. Being aware of the importance of early intervention, and having missed that out for Priya, I decided to work towards early identification and intervention for other parents,” she says.
Coincidentally, after her training, Maria got a job as the superintendent at SPASTN itself, and she decided to use the opportunity as a chance to develop the organization in a way that parents needed.

She worked with SPASTN for ten years, and her first move on joining the organization was to start a centre in north Chennai, because most special schools were located in the southern part of the city at that time.

[caption id="attachment_45923" align="aligncenter" width="600"]Priya at a dance competition Priya at a dance competition[/caption] Maria also arranged for a place in rural Chennai and started travelling there to reach as many children as she could. This had a huge impact and Maria was selected by SPASTN to go to the UK to study more about special education. On returning, she extended the same program to semi-urban areas of Tamil Nadu and started three centres for early identification and intervention. She also sensitised over 2,000 anganwadi workers, village health nurses and other rehabilitation professionals about different disabilities, covering 500 villages with her team of therapists, physiotherapists and special education experts. She started a screening program for newborn children as well, so that disorders could be treated early if detected in time. Later, Maria left the Spastic Society because the organization only targeted children with cerebral palsy at that time. She started an organization, Maria Charitable Trust, with her savings, to educate children with all disabilities.

Priya was 24 by this time, and like other parents of children with challenges, the burning question on Maria’s mind was: “What next?”

maria4 She had used all her learning to provide Priya with an independent life and she now wanted a secure future for her:
“My daughter is very independent. She is into sports, dance and painting. I used dance as a therapy for her. Due to spasms, her right side is affected; she cannot use her right hand and walks on her toes when using her right leg. She is non-verbal too. Irrespective of all these challenges, she dances beautifully,” smiles Maria.

She entered Priya in many competitions and events and ensured that she had the chance to socialise and mingle with people.

[caption id="attachment_45921" align="aligncenter" width="1000"]Art work by Priya Art work by Priya[/caption] After running the charitable trust as an education centre for some time, Maria decided to develop it into a residential care organization.
“I closed the school, convinced my husband to take voluntary retirement, and we bought a big house for Rs. 50 lakh. But after investing so much, the problem was that parents were not willing to pay for the services I was offering. Unfortunately, we had to shut down the centre and I was almost bankrupt,” she remembers.
A disheartened Maria then decided to shift to Canada. There were many good residential programs in Canada at that time and she thought the move would be good for Priya. But after leaving Priya behind and living there for two years on a work permit, when Maria finally applied for family immigration, the authorities declared Priya to be medically inadmissible. Maria took on a legal battle, again spent a lot of money, but all in vain.

The family’s troubles did not end there. When Maria came to India in 2012 after spending seven years in Canada, Priya was diagnosed with third stage breast cancer.

[caption id="attachment_45922" align="aligncenter" width="600"]Cancer didn't stop Priya from continuing with her vocational skills Cancer didn't stop Priya from continuing with her vocational skills[/caption] “That was the only time when I thought that I have not done anything for my daughter. I worked for so many people and went on spending money, without saving anything for her,” she says. But Priya showed immense strength and fought her disease. Finally, after a surgery and six chemotherapy sessions, she was free of the cancer. In 2004, Maria met the national award winning film director, Ramsubramaniam. When he saw Priya and heard about her struggle, he decided to make a film about children like her. The film will be released soon and Priya is the role model for the protagonist. Maria thinks this movie will spread awareness and help people understand the feelings of people with disabilities.
“People like my daughter are silent sufferers. The world does not accept them and they crave friendship. So called normal people like us don’t often understand their needs. Priya carries a phone and loves to make friends. But nobody calls her. Even if she calls they are too busy to call back. The world is a lonely place for people like her. Ultimately, it is only the parents who are their companions and friends. Unless we voice their issues nobody will do so for them. But as we are getting old there are limitations to us as well. My question is: What is the world offering them? What about their need for life partners or their sexuality? How are we addressing the issues of children like my daughter?” Maria concludes with this emotional question.
Here’s hoping that her journey will inspire some answers.

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The Extraordinary Story of Janarthanan, a Mouth Painter Who Exemplifies Grit and Determination

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This article is part of the #KhudKoKarBuland series & is made possible by Birla Sun Life Insurance.

Janarthanan is a 24-year-old mouth artist. He lost both his hands in a devastating accident at the age of eight and has been facing each day like a challenge since then. He has won more than 150 prizes in painting competitions since 2003, including two national awards. This is his story of determination and grit, narrated with his beautiful art.
“People always feel that they can’t do something or the other because they concentrate on a lot of negativity. But remember how we used to play many different games as children? We would focus on something – a puzzle to solve or a game to finish, and be completely positive that we will be able to achieve success. If we could think that way as kids, why can’t we have the same attitude as adults? One just has to feel positive,” says Janarthanan, a young man who lost both his hands and a leg after an accident when he was 8 years old.

Today, this Chennai resident is an accomplished mouth painter and has won over 150 prizes at different painting competitions.

[caption id="attachment_42855" align="aligncenter" width="600"]Mouth Painting Janarthanan[/caption] It was March 4, 2000 – just another day for young Janarthanan who returned home after school and went to the terrace to play with his friends.
"I found a seven feet long iron rod on the terrace and started playing with it. I was spinning it while standing near the edge of the terrace and didn’t notice a high tension electric line adjacent to the building. The rod suddenly came in contact with the line," recounts Janarthanan.
He fainted due to the electric shock and the nearest transformer burst into flames. Hearing the noise, his parents and neighbours rushed to the spot to find the little boy burnt and unconscious. He was immediately taken to a nearby private hospital but the doctors there had never seen such a case. Janarthanan had suffered 99% burns and they didn’t know how to treat him. So his father was advised to take him to the Government Stanley Hospital. A group of 13 doctors, headed by a child specialist named Dr. Seeniraj, treated Janarthanan.

As the injuries were very deep, they had to amputate his right hand up to his shoulders, left hand up to the elbow, his left leg till the knee, and the toes of his right foot.

[caption id="attachment_42850" align="aligncenter" width="1000"]Mouth Painting His family[/caption]
“I was cured after eight months and eight operations. Dr. Seeniraj told my father that this child has got a second chance and it means that he will achieve something great in life. It gave my parents a lot of hope,” smiles Janarthanan.
He asked his doctor a simple question during the recovery period – “How will I go to school after all this? How will I go normally, like I used to go earlier?” And the even simpler answer to this question changed his life.

“The doctor just told me that he knows many people who write with their mouth, and I should also try. I started trying that evening only. And kept practicing for days till I finally succeeded,” he says.

Mouth Painting After his treatment, Janarthanan went to the Government Institute of Rehabilitation Medicine in Chennai to get a prosthetic leg. His family had spent a lot of money on his treatment by then, and this was the maximum they could afford. Soon, he started walking, after fighting immense pain with his unbeatable determination during the practice sessions. All this while, Janarthanan also continued to practice writing with his mouth. One day, he saw his mother drawing some flowers in a notebook. It struck him then that he could try drawing and painting as well. So he did.

And after several days of hard work, he succeeded at that too – painting with poster and water colours.

Mouth Painting

This was when some people at the rehabilitation centre advised him that he should participate in painting competitions because his work was so impressive.

[caption id="attachment_42854" align="aligncenter" width="1000"]Mouth Painting He writes, draws and paints with his mouth[/caption]
“Earlier, I used to feel very shy and bad about going out. But when I did finally participate in one competition, I ended up winning the first prize. It really encouraged me. Everyone was talking about my victory and there were posters about my recovery at the hospital to encourage other patients like me. Every time I saw those posters, I used to get motivated to participate in more competitions,” says Janarthanan.

He practiced his art himself and never joined any training centre to learn painting or drawing. Since his first victory, he has participated in many big and small events, winning in most of them.

Mouth Painting The first time he participated in a national level competition was in 2005, through Bal Bhawan in Chennai. The competition was held at three levels – zonal, district and state.

Janarthanan went on qualifying at each level to finally reach the finals, which were organized in Delhi.

Mouth Painting
“I didn’t participate with children with physical disabilities. The competition was for everyone, and it was really tough. A few months after the event they sent me a letter saying that I was selected for the National Award and had to go to the Rashtrapati Bhavan to receive it. I didn’t expect anything like that, and it was a priceless moment. I met Dr. APJ Abdul Kalam. ‘You should be a role model for others,’ he told me. I am still living by his words,” the artist remembers.

He has won more than 150 awards since 2003, and received a recent one from musician A. R. Rahman.

[caption id="attachment_42856" align="aligncenter" width="1000"]Mouth Painting Receiving an award from A.R. Rahman[/caption]

Janarthanan wrote all his exams with his mouth, including his class 10 board exams for which he was granted some extra time.

Mouth Painting With his desire to become a computer graphics designer, Janarthanan did a course in multimedia, followed by a visual effects course from Loyola College.

After that, he joined a media channel and worked there for three years.

[caption id="attachment_42848" align="aligncenter" width="500"]Mouth Painting With Dr. APJ Abdul Kalam[/caption]

Currently, 24-year-old Janarthanan is working as a freelancer in the field of film editing and is concentrating on learning more about film direction.

[caption id="attachment_42847" align="aligncenter" width="500"]Mouth Painting He is exploring the filed of film direction[/caption]
“I face each day like a challenge, and without the support of my parents and sister, I would not have reached so far. I just want to continue being positive and do what I love,” he concludes.
Janarthanan, you really are an inspiration for many. Here’s wishing you the very best for all your future projects.

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Abhishek Thaware Defied Destiny and Disability to Become India’s First Teeth Archer

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Destiny had set him up for failure by taking away his right hand and leg. But Abhishek Thaware defied destiny by becoming the first teeth archer of India. Abhishek Sunil Thaware excelled at the Para Archery World Championship trials conducted by the Archery Association of India (AAI) in July 2015. He then bagged a silver medal at the All India Archery meet for the disabled in Baroda in August 2015. In September, he qualified for a state-level meet conducted by the Nagpur District Association. He finished 27th at the state archery meet at Solapur in October, 2015. He won with scores of 637 out of 720 points in Nagpur varsity's inter-college meet last month, that is, in January 2016.

He also come out with flying colours, taking the 69th spot among 200 participants, at the Inter-University meet at Patiala in the same month.

[caption id="attachment_47756" align="aligncenter" width="800"]arch3 Abhishek Thaware[/caption] By now, you may have guessed that the archer mentioned plays in the Paralympics. But here's what's extremely unusual about his achievements. Abhishek is the first teeth archer in our country. Yes! You heard it right. Abhishek Thaware pulls the arrow with his teeth and hits bullseye! arch1 A worker in a private transport firm, Sunil Thaware’s life took a tragic turn when his one year old son, Abhishek, developed a fever one night. He was taken to a hospital in Nagpur, where the doctors gave him an injection in his right arm. The fever was gone in two days but the injection caused an infection that afflicted Abhishek’s right arm with polio.
“My parents never treated me as a disabled child; I went to a normal school. And I think that was the best decision taken by them," says Abhishek
Abhishek was always interested in sports and started taking part in athletics at state and national levels when he was in 8th standard. He also won several medals in long distance running. His favourite events were 1500 m and 5000 m. And he was doing all this in the normal category. Fortunately, when he was in 10th standard, he met Mr. Rajendra Khandal, who ran a sporting club called Adarsh Vidyamandir. Khandal showed him how to do cross country running. Abhishek also came in contact with MSPA (Maharashtra State Paralympic Association, Nagpur). For nine years, Abhishek was a para athlete. He did not even remember that he needed his right arm. His legs were enough to make him feel complete. But destiny had a different plan! On October 26, 2010, when Abhishek was practising, he suffered a knee injury. The injury was so serious that his leg had to be operated on. After the operation, Abhishek had to stop playing as per the doctor’s advice. But all he knew was running, so he ran a relay at the state level and won a bronze medal too. But after this, his knee never allowed him to run again.
“The world seemed so unfair to me when this happened. The doctors asked me to rest month after month. It was almost a year and I could not practise. I still had hope alive, thinking that I will start again once I am fine. But at the end of almost two years, the doctors declared that I would not be able to run again," says Abhishek

But perhaps everything happens for a reason. And in Abhishek’s case, the reason was archery. Abhishek’s cousin, Sandeep Gawai, was an archer and he motivated Abhishek to join him.

arch5  
“I wanted to do something for my country! If I was normal, I would have definitely chosen to go into the defence services. But that was not possible. Sports was the only way in which I could fulfil my dream of making India proud. So I agreed to do what Sandeep bhaiya suggested immediately," he says.
However, this was also not easy for Abhishek. He could hold the bow with his left hand but the right hand did not have enough strength to pull the arrow. “People who don’t have one arm use the shoulder to pull the arrow with the help of a clip. But in Abhishek’s case, he did not have strength in his shoulder either. I asked him to try with his teeth then," says Sandeep Gawai. Abhishek succeeded in pulling the arrow with his teeth. But again, there were financial constraints to his participating in this sport. Being from a lower middle class family, Abhishek could not afford a professional bow and arrow. He had to wait for two years to start pursuing his dreams just because he did not have money.

Finally, in 2014, Abhishek’s mother mortgaged her jewellery and he got a second hand archery set.

arch6 In the meantime, he met his coach, Mr. Chadrakant Ilag, a constable with Maharashtra Police. Ilag taught archery to kids in Dronacharya Academy, free of cost. After he saw Abhishek’s dedication towards this sport, he offered to train him in his academy for a month during the summer session. He also arranged for Abhishek’s stay there. This opportunity helped Abhishek polish his skills. After this, Abhishek kept visiting Mr. Ilag for further training and soon became the first teeth archer in the country. [caption id="attachment_47770" align="aligncenter" width="406"]archer3 Chandrakant Ilag - Abhishek's coach[/caption] Today, Abhishek has achieved his goal with his will power and determination. His physiotherapist, Dr. Ashish Agrawal, helped him become physically fit, and his friends, Vipin, Mohnish and Tushar, helped him financially to get over every hurdle in his way. Jai Hind Ekta Sanskrutik Krida Mandal offered him their grounds to practise. However, this budding sportsman is still going through a lot of hardships.
“Archery is an expensive sport. It is not possible for my parents to bear the cost of my training, diet and the equipment needed. My friends help me a lot but how far can they help. I appeal to everyone reading this to help me. I really feel that companies should sponsor sportsmen. We will play for them and make them proud and once we are retired we can even work for them,"  Abhishek says.
Abhishek is only 25 years old and is also a first year student of MA (Social Science), at DNC College, Nagpur. He wants to do MSW (Masters in Social Work) in the future.
“There are no polio issues now in the country. I am so thankful for that. We never count how much the nation does for us. I want to repay at least a bit. I want to represent my country at the international level and I will do anything for that," he adds, determinedly.

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At 22, She Lost Her Leg. At 26, Manasi Joshi Was an International Level Para-Badminton Player!

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This article is part of the #KhudKoKarBuland series & is made possible by Birla Sun Life Insurance.

Manasi Joshi was only six when she started playing badminton with her father. She continued to practise the sport as a hobby and also played at the district level in a few matches. In 2011, she met with an accident and lost her left leg. Today, Manasi is a national and international level para-badminton player. This is her inspiring journey.
“It is really easy. Once you decide you want to do something, there will be 10 people who will come forward to help you. You just have to take one step at a time, be regular at what you are doing, and focus on it. When you are focussed, everything will become very simple,” says 26-year-old Manasi Joshi, a para-badminton player who plays at the national and international levels.

She has won several medals and has played against world champions too.

[caption id="attachment_45530" align="aligncenter" width="600"]manasi6 Manasi Joshi - the champion[/caption] At the age of 22, Manasi met with an accident on December 2, 2011. She was riding a two-wheeler on her way to work when a truck hit her and crushed her left leg. By the time she had the surgery, she had lost a lot of blood. The doctors tried to treat her leg but it got infected and had to be amputated. After spending 45 days in the hospital, and learning to walk all over again with the help of crutches, she was back up again – optimistic and hopeful as always. Once her wound was healed, she got a prosthetic leg. She talks passionately about the time when the love for badminton entered her life:
“I was very young, around 6 years old, when my father started teaching me how to play. We had only one racquet and it was very old. My father would just throw the shuttle and I would try and hit. I was shorter than the racquet at that time. I joined a badminton coaching class after a few years. And after that, there was no looking back.”
A resident of Mumbai, Manasi was always interested in science and engineering. She pursued her Bachelor’s degree in electronic engineering, developed an interest in software development, and started working as a senior software engineer with Atos India. She continued playing badminton as a hobby, while working full time. Before her accident, she also played at some district level matches.

The first match she played after the accident was in August 2012 – a company-level badminton championship conducted by Atos. She came first in women’s singles.

manasi2
“After that match I realised that I still have skill and I can play without my leg too. The CEO and other colleagues in the office praised me a lot and it helped boost my confidence,” she says.
All this happened at a time when she was still going through rehabilitation and learning to walk. For eight months after getting her prosthetic leg, she continued to use crutches for support. So, it took a few months before she could play at higher level tournaments. In June 2014, Manasi started working out to be fit again. She set daily targets and began weight training and walking. In August 2014, she got the chance to represent Maharashtra at the selection trials for Asian Games 2014. She didn’t get selected but that match was a new beginning for her.
“I had made many amputee friends by that time. One of my friends, Niraj George, who is also an international para-badminton player, encouraged me to play at national and international levels. He made sure that I aim high because, according to him, I have a lot of skills,” she says.
In December 2014, Manasi played her first national-level tournament and won a silver medal. It was a very special match for her because she got the chance to play against Arjuna awardee Parul Parmar. She also got selected for the fifth Spanish Para-Badminton International Championship, which was to be held in March 2015.

To be ready for her first international-level game, Manasi practised for two hours every day during weekdays and four hours a day during the weekends.

manasi7 Had she ever thought of making a career out of badminton before her accident?
“Never. I never thought about badminton as a career option. My priorities at that time were just like every other college graduate – to get a job with a good package, to get a nice home, an expensive car, and other such materialistic things. But after my accident, my goals are not so materialistic anymore,” she says. For Manasi, badminton was more like a means to remain fit before the accident.

While the recovery period was long, Manasi never let negativity hinder her confidence.

manasi1
“You need to learn how to balance. You need time for your body to adapt to new things because the prosthetic leg is heavy and tight. Fortunately, I had many people around me who helped me a lot. Everyone was very patient because they knew that the body takes some time. But once you adapt, it becomes very easy. That is how things turned in my favour,” she says.

Her next international match after the Spanish tournament was the BWF Para-Badminton World Championships held at Stoke Mandeville, England, in September 2015.

manasi4 One of the most memorable matches for Manasi was a mixed doubles match where she got a chance to play against previous world champions with her partner Rakesh Pandey.

That match helped them realise their potential and encouraged them to move forward.

manasi3 Manasi’s father, who is a scientist at Bhabha Atomic Research Centre, has always been an inspiration for her.
“My family always keeps pushing me. My sister and father encourage me to do things I like. Other than being a scientist, my father is also an author and he plays tennis for his company – he somehow finds time. I feel that if he can find time at his age, I can definitely do it too. They inspire me to do something that I never thought I had the potential for,” she says.
She somehow juggles time between her work and the sport. Manasi wakes up at 4:30 a.m. so she can practise in the morning before leaving for work. She does not have a coach right now. Her brother, who is also a badminton player, teaches her at home. She also practises yoga regularly.
“This sport is really close to me. It has made me what I am today. I will love to give it more time and push myself to the next level. My goal is to be world number one,” she concludes.
Here’s saluting Manasi’s spirit, determination and positive attitude, which can inspire many around the world.

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IIT Kharagpur Students Develop a Driverless Bicycle That Can Reach You with Just an SMS

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For people with disabilities, for those who face trouble while steering or pedalling bicycles, for the benefit of bicycle sharing stations, for solving innumerable environment issues – this driverless bicycle developed by some students of IIT Kharagpur may well be the answer. Read how. “We saw some differently abled people who could ride bicycles but had to face many problems when trying to take their bikes out from the parking space, as most such spaces are not disabled friendly. To tackle this problem we started working to make a bicycle that would be controlled wirelessly,” says Ayush, a fourth year Mechanical Engineering student of IIT Kharagpur, who went on to develop i-Bike – a unique, disabled friendly bicycle that autonomously rides itself towards any given location.

The brainchild of Ayush Pandey and Subhamoy Mahajan, i-Bike has autonomous steering, brake, driving and balancing mechanisms.

ibike3 Moreover, one can even ride it manually as and when required, with the help of its dual locomotion technology. The bicycle uses global positioning system (GPS) for automatic manoeuvring and responds to the GPS coordinates of the destination received via SMS with the help of an Android app meant for i-Bike. In order to avoid obstacles in its path, the bike utilises laser and sonar based sensors and uses the data to plan its motion. It has unique and affordable software architecture, which enables it to follow specialised bicycle lanes (as available in many countries with well-established bicycle sharing centres) and avoid obstacles. The bicycle is connected to a wireless telephone network, which provides wireless control and live tracking mechanisms. If, for example, an arm amputee wants to use i-Bike, all he/she has to do is send an SMS to the bike using the Android app that has an option - “call the bike to my location.” The GPS location is saved on a server that is continuously accessed by sensors on the bike. On receiving the location information, the bike instantly starts moving towards the destination. The rider can then add a new destination using the app and reach there with the help of autonomous steering.

While working on the project for about a year, Ayush and Subhamoy realised that the bike can have many other applications other than parking retrieval for people with disabilities.

ibike1
“We felt that it can also be applicable in those bicycle sharing stations that run in many developed cities around the world and are also being planned in India. In such systems, you pick a bicycle from a station, ride it, and then leave it at another particular station. So you have to find a sharing station each time you want to leave the bike – governments have to invest a lot in setting up several stations like these. But if the bicycle is autonomous, it can be called by a user to his/her home and can be sent back to the station after use. This way, we can completely change the bike sharing system,” says Ayush.

The i-Bike team comprises 13 undergraduate students from various departments of IIT Kharagpur. Ayush and Subhamoy initiated the project in October 2014 and it has won several awards in different student competitions.

ibike4 In the recently concluded nationwide innovation challenge organized by KPIT Technologies, i-Bike won the first prize and was awarded with Rs. 5 lakh prize money.

The theme of the contest was ‘Smart Solutions for Energy and Transportation’ and i-Bike won among 1,700 other ideas. The team is currently filing a patent for the product design.

ibike2
“The best thing about the bike is that it is a normal bicycle with external modifications only. All modifications are retractable and it can function as a normal bike by simply flicking a switch. So, in the case of bike sharing systems, users can ride the bike themselves after calling it autonomously. No such design exists in the world,” says Ayush.

The steering of the bicycle has been modified using an innovative gear mechanism that allows both autonomous and manual modes with the help of a latch mechanism.

ibike5 Trainer wheels have been used for balancing the bike and these too are easily retractable with the help of a switch. With i-Bike, this team plans to solve the last mile transportation problem in many urban cities. The bicycle is primarily for use by people with disabilities, like amputees and the visually impaired, but will also be very useful to commuters who struggle to find affordable means of transport after getting off local trains, metros, and buses. Once the team has the patent, they plan to collaborate with companies willing to start bicycle sharing centres in India. You can contact Ayush by writing to him at ayush.9.pandey@gmail.com.

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This 12-Year-Old Singing Prodigy Was Born with 40 Fractures. But That Did Not Break His Spirit.

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Sparsh Shah, a 12-year-old singing prodigy who lives in the US, was born with almost 40 fractures. He has given more than 45 performances in just the last year-and-a-half. Read his inspirational story here. Sparsh (aka Purhythm) has written 10 songs – "This Love Will Never Fade," "There's Always Tomorrow," "Why'd You Have To Leave Me?", "You Are My Heroes," "Count on Me," "A Little Bit of Respect," "Turn Around," "Birthday Wishes," "You're The One," and "No One Knows." He has composed the music for most of them too. Listen to him pay homage to his favourite Eminem here: [embedvideo id="CqwzlMUt9oM" website="youtube"] Aren’t you still feeling that beat? Sparsh has been learning Hindustani classical music for the last seven-and-a-half years and American vocal music for the last three years. Sparsh is multi-talented. He performs at community events and has appeared on local radio stations and television shows, besides hosting shows as an MC. He has memorized 250 digits of Pi, can say the 12 longest words in the English dictionary in less than 18 seconds, and can speak in four different accents in English. He has written several poems, short stories, motivational/funny speeches ("I am Disabled"), etc., and acted in the developmental reading of a play called The Greatest Choice at the Crossroads theatre in New Jersey. He was able to spell a 45 letter word, “Pneumonoultramicroscopicsilicovolcanoconiosis,” at the age of 6.

Hiren and Jigisha Shah migrated to the US some 14 years ago. In 2003, when Sparsh was born, they could never have imagined their little boy would touch millions of hearts soon.

[caption id="attachment_47910" align="alignnone" width="960"]Sparsh1 Sparsh Shash (Purhythm)[/caption] His parents, however, could experience the joy of holding their baby only after six months of his birth – Sparsh had broken 35-40 bones while emerging from his mother’s womb.

Sparsh was born with an incurable disease called Osteogenesis Imperfecta.

sparsh This condition makes his bones extremely fragile and brittle – even a hard handshake can break his bones. He cannot bear weight on his hands and legs, so he cannot walk or run like other normal kids. He has had more than 125 fractures in the first 12 years of his life already and the doctors cannot predict how many more are to come. In April 2015, Sparsh participated in and won the prestigious talent competition Young Voice of NYC, and was honoured to be made the 'Youth Ambassador' for St. Jude Children's Research Hospital. He now supports the hospital in spreading awareness about the fight against pediatric cancer.

Sparsh has been a catalyst in helping raise over half a million dollars for various philanthropic organisations.

[caption id="attachment_47913" align="aligncenter" width="960"]Sparsh3 Sparsh, at the Chennai floods fund raising programme[/caption] Sparsh was also a member of the Watt NXT Robotics team that won at the state and regional levels in the US. He participated in the first World Robotics Championship in St. Louis, MO in 2015. Sparsh won the first prize in the speech competition about Dr.Ambedkar at the Indian Consulate in New York City in November 2015. Sparsh also participated won the Swardhara Singing Competition organized by Marathi Vishwa, New Jersey, in February 2016. He always thanks his parents and grandparents for his success:
“I don’t see myself as disabled. I just dis the ‘dis’ from disabled. Most people with disability always keep thinking about their disability and that makes others think about it too. I want to be the courage of such people," says Sparsh with a smile.

When Sparsh was just three years old, he started learning the keyboard and reading books. However, as his bones kept breaking, it was difficult for him to continue to learn the keyboard and he had to stop playing.

Watch him say hello to The Better India readers here. (Thank you Sparsh for this!) [embedvideo id="45Yh_cV1jj0" website="youtube"] Once, when he was three-and-a-half, his family was travelling in the car and his father switched on the radio. To his parents’ surprise, Sparsh remembered the song that was playing on the radio and started singing along. They thought that he perhaps knew the song because it was a well known one. But then, he sang the second, the third and even the fourth song that was played on the radio. When they asked Sparsh about this, he said his preschool bus driver played the same channel  and that is how he had memorized all the songs. This was the beginning of the making of this gifted singer and musician.
“Dreams are not enough, Hard work is what turns them into reality! And so, he makes sure that he works hard enough to make his dreams come true," says Jigisha Shah, Sparsh’s mother.
Sparsh started learning Indian classical music at the age of 6 and is a student of Pandit Jasraj Institute of Music (PJIM) since 2009. He also learns American vocal music.
“All we tell him is that no matter what situation you have in life, never limit yourself!. We believe that Sparsh is a miracle who has come to this world to do something extra special," says Hiren Shah (Sparsh’s father)

A 7th grader, Sparsh is also excellent in his studies. He has a 5-year-old brother named Anuj who plays video games with him.

[caption id="attachment_47929" align="aligncenter" width="960"]SparshWithFamily Sparsh with his family.[/caption] Sparsh has gone through multiple surgeries for his brittle bones. His parents help him write when he has fractures, or he uses voice to text technology to do his homework.
When asked how he deals with the pain, he says: “There is not much you can do about pain…isn’t it? Crying is just a natural response to pain but you need to smile. This is what my Papa taught me since I was small. He said that I should tell my bones to smile whenever there is a fracture. If I don’t smile at them, they won’t respond to me with a smile. And so, whenever there is an x-ray after a fracture, I look at my bones and say – Smile please bones.”
Sparsh loves rapping as he believes that rap makes even sad songs come alive; rapping keeps the spark going. This huge fan of Eminem also loves Bollywood songs. "Abhi mujh me kahi" by Sonu Nigam is his favourite Hindi song. He met musician Neel a year-and-a-half ago, at a Karaoke competition. They sang together. Since then, Neel and Sparsh have been inseparable musical buddies and they have written a wonderful motivational duet: "Count On Me." [embedvideo id="W7kiNVTBoyc" website="youtube"] Sparsh recently auditioned for America's Got Talent and is waiting for the results, which will be out by March 2016. He won the first prize in Gaan Nipun Spardha, a prestigious singing competition organized by PJIM and was awarded a certificate of recognition by none other than the stalwart of Hindustani classical music, Sangeet Martand Pandit Jasraj, on February 27, 2016. [caption id="attachment_47921" align="aligncenter" width="960"]SparshWithPtJasraj Sparsh, with Pandit Jasraj[/caption] Despite all the challenges he has faced, Sparsh's spirit is unbreakable. He aspires to sing in front of a billion people one day.
“I want to leave the marks of my footprints (aka wheelchair tracks ;)) in the sand of legacy so deep that not even a tsunami can erase them," concludes Sparsh.
Join this miracle boy’s journey to fame and help him make his dream come true by sharing his latest sensational cover song: “Not Afraid” with all your friends and family members. To listen to Sparsh’s magical music, log on and subscribe to his YouTube channel. You can also connect with Sparsh and keep updated on his progress by liking his Facebook page or following him on Twitter or Instagram .

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This Girl with Intellectual Disabilities Made India Super Proud at the Special Olympics

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When 15-year-old Yelikeri Sreelatha began her journey, many people considered her to be an insignificant child with special needs. Hailing from Kannepalli, a small village in the Kalyandurg Mandal of Anantapur, Andhra Pradesh, Sreelatha is the elder of the two children in the family. Her mother started working as a daily wage labourer after losing her husband, and she has been supporting her children as a single mother.

Sreelatha was admitted to one of the many schools for children with intellectual disabilities, run by an NGO named Rural Development Trust (RDT) across Anantapur district. It was in this school where her teachers recognised her skills in sports at the age of 15.

so1 Following this, they helped her join RDT’s Community Based Rehabilitation (CBR) program, along with 33 other individuals in 2012. RDT’s centre in Bathalapalli implements programs for young people with intellectual disabilities to help them become independent, by providing vocational training and education, along with training in basic life skills and sports.

Sreelatha continued training there and sports was used as a medium to provide her with a purpose in life. She chose badminton and was quick to pick up the game.

[caption id="attachment_48623" align="aligncenter" width="1000"]so2 Sreelatha (second from left) along with her LA contingent posing with RDT Program Director, Moncho Ferrer[/caption] Her interest in the sport was taken a step further after she was selected to represent Special Olympics Bharat through 'unified sport', which is a concept promoted by Special Olympics to encourage able bodied individuals to play and interact with individuals living with disabilities. Her first outing as an international athlete to Special Olympics Asia Pacific Games, Australia, was a dream come true. The simple news of her travelling to Australia turned her and her team-mates into celebrities in their own right. The outing was more than just an overseas trip as she came back a champion with two gold medals and a bronze medal. But more importantly, it provided her with the exposure she needed for a surge in her self-confidence and self-esteem. Special Olympics Bharat is a National Sports Federation accredited by Special Olympics International to conduct Special Olympics Programs in India.

Later, she was selected for the Table Tennis Competition at Special Olympics LA World Games 2015. This time around, she travelled with 12 more RDT supported athletes who represented Special Olympics Bharat in various disciplines such as badminton, powerlifting, basketball, volleyball, handball and football.

[caption id="attachment_48622" align="aligncenter" width="800"]Sreelatha after her Mixed Doubles final at LA Sreelatha after her Mixed Doubles final at LA[/caption] The RDT contingent came back with a staggering haul of 17 medals, 2 of which were bagged by Sreelatha herself (a gold and a silver). The total of 17 medals won by the RDT athletes included 3 gold, 5 silver and 9 bronze medals. Sreelatha, along with her team-mates, has benefited from RDT’s CBR program in a great way, including the vocational, education and sports specific training provided to them by Spanish coaches and volunteers. Despite their rural origins, they are the only few who have travelled great distances, been to foreign lands, and can be considered some of India’s finest athletes and individuals. Among its various need-based welfare programs for the development of marginalised sections of the society, RDT also works with people with disabilities to ensure that they have equal opportunities in all fields of life. Know more about Rural Development Trust by visiting here.

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This Father Is Making His Daughter with Cerebral Palsy a Post Graduate. By Carrying Her to Class.

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Flora Shah was 6 months old when she was diagnosed with cerebral palsy – a condition that led to movement disorders. She could never walk. Over the years, she also faced difficulties using her right hand properly.

Today, the 21-year-old is a proud student at Maharaja Sayajirao University of Vadodra, Gujarat.

flora4 A first year student in the Master of Commerce course, Flora completed her Bachelor's from the same college and she dreams of getting a good job after finishing her studies. She is in this position today because of her hard work and the fact that her parents never lost hope. They made sure she received the kind of education she deserved. Flora too never let her condition come in the way of her aspirations.

“Initially, no one was ready to give me admission in any school because of my condition,” she remembers.

flora2 After trying at many places, she was finally admitted at Maharani Girls High School in Vadodra, where she studied till Class 7. Later, she moved to Shree Sayaji High School. In her Class 10 and 12 board exams, Flora secured the first and second positions respectively at the district level. She also received a certificate of recognition and a cheque for Rs. 5,000 from Prime Minister Narendra Modi, who was the Chief Minister of Gujarat at the time. Because of difficulty in moving her right hand, Flora’s speed when writing exams was often very slow compared to other students in her class. So she was unable to complete her exam paper sometimes.

But nothing can deter her spirit to study. She recently received the outstanding student award for her performance in the B.Com final exam. Her teachers and friends also play a huge role in the story of her success.

flora3
“My teachers have been very supportive and have always encouraged me to move forward. If such colleges are present all over the world, people like me will never be left behind. Sometimes, when I am unable to go to class, I easily study from home, and my teachers guide me over the phone whenever I have some doubts. My friends too – they are always helpful. They share notes and come over to my place if I need them. They never discriminate against me because of my disability. In fact, they have always considered me an equal. If people at my college were not like this, I would not have been able to reach where I have,” she says.

But more than anyone else, it is her parents who Flora thanks the most.

flora1 “My parents have done a lot for me. From school to college, they dedicated their time to make sure that I was able to complete my education," she says. Her mother is a homemaker and her father owns a shop in the city. From Class 1 to 4, Flora’s mother used to go to school with her, stay there throughout the day, and then bring her back home. Later, she would drop her in the morning and come back to pick her up. Till today, her father carries her to her classroom on many days because some classes take place on the upper floors. He does not care if he has to leave work to do so.
“I want to study hard and get a job because I don’t like being dependent on anyone. I have always dreamed of becoming an independent woman,” she says with a hopeful smile.

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MY STORY: ‘Doctor, I appreciate your diagnosis but I refuse to accept your verdict.’

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In the MY STORY section, we present some of the most compelling and pertinent stories and experiences shared with us by our readers. Do you have something to share? Write to us: contact@thebetterindia.com with "MY STORY" in the subject line.

Girish Gogia has faced enormous challenges. A freak accident left him paralysed neck down. A few years later his wife was diagnosed with multiple sclerosis and she too was paralysed. Against all odds, this man restarted his business and set out on a journey to become a motivational speaker to others.    "Doctor, I appreciate your diagnosis but I refuse to accept your verdict. I will not live like a vegetable all my life.” This was the determined and passionate statement I made to my neurosurgeon 16 years ago, seated on the wheelchair, when I was pronounced a quadriplegic. Since then there has been no looking back. My world had turned upside down when I went to Goa in December 1999 with my wife Eesha to experience deep sea diving - my favourite adventure sport. A spirit of festivity was in the air.

We reached the top of a cliff, which I found perfect for a dive. With a deep breath and my hands stretched ahead, I plunged into the sea. Post that there was complete darkness.

[caption id="attachment_46286" align="aligncenter" width="3289"]Girish Gogia Girish Gogia[/caption] I regained consciousness only on the hospital bed where I realised I couldn’t move my limbs. I was in deep pain. And life changed It was then that the doctor explained the diagnosis. My cervical spinal cord nerves had been completely pulverized and I was neck down paralyzed for life! He said my condition was incurable and that I had minimal chances of survival. Even I were to survive, I would be in a vegetative state. I was devastated! I refused to believe that this could happen to me.  It felt like there was no light at the end of the tunnel. I was being sucked into an abyss. That powerful voice within  The power you need to succeed is already within you and if you can channelise this untapped potential, nothing is impossible – boomed a deep, powerful voice within me. I listened to it and believed in it. It was an epiphany of sorts, which gave me fresh vigour to keep marching ahead.

Months passed by. I survived. Something kept me alive, giving me the courage to not give up.

smile Yes, it was that tiny little voice that kept growing bigger and bigger, becoming stronger each passing day. It said “Girish! Wake up and move ahead. Get out of the abyss. You have come into this world for a purpose. Your accident was not meant to defeat you. Go inspire a billion hearts. Hope and positivity will spring from your heart and inspire all!” I am an interior designer by profession. The first thing I did was to restart my profession against seemingly insurmountable odds. I was 90% paralysed post my accident but I managed almost 15 designing projects with great support from my wife, parents and siblings! However, something was still bothering me. I confided in Eesha about the feeling of emptiness within, despite the success. “Share your example of resilience, grit and death-defying survival and victory with the world,” she said, and these words got deeply entrenched in my mind. [caption id="attachment_45895" align="aligncenter" width="400"]Girish Gogia with his wife, Eesha Girish Gogia with his wife, Eesha[/caption] Life threw one more challenge  Life, I guess, was not through throwing me challenges -- I received yet another setback when my loving wife was diagnosed with a debilitating, degenerative disease named multiple sclerosis! This again, has no cure. Eesha’s condition deteriorated to the point where she gradually lost 70% of her vision and 90% of her speech. She became completely paralysed neck down, unable to move even an inch or do anything on her own. It’s been nine years now that she is bedridden. But we have stood stoically besides each other like pillars of support. We came to observe life very closely. We realized that the human spirit is far stronger than anything that could happen to it. We also realized that giving is the highest level of living.

I shut down my thriving interior designing business to answer my divine calling, which was to reinvent myself as an inspirational and motivational speaker.

12080018_955169754561778_5890982094669176490_o My wife is unable to accompany me physically for my seminars but she is always there in spirit as a part of Mission Positive Earth. We both see the world as one global family, loving and respecting each individual unconditionally. We share our example of resilience in the face of gruelling adversity, spreading hope, and thus inspiring people to transform victimhood into victory and triumph. My avatar as a motivational speaker My journey began with small seminars/life transforming sessions at orphanages, old age homes and various non-profit organizations. This soon progressed to bigger corporate seminars for multinational companies and educational institutions, with my first corporate seminar being at the Taj Palace Hotel, Mumbai. I feel fulfilled and inspired thinking of the seminar for an IT company in Mumbai that I had conducted where I addressed a 500-plus audience dressed in my favourite black suit. “Neck upwards, I have wise and rational analysis. I still have a heart that beats, a soul that feels and a mind that thinks optimistically,”  I told them.

I didn’t really focus on the neck-down paralysis of my body as I spoke seated on the wheel chair about positive thinking and the power of limitless human potential.

Photo Mastek_opt Yes, I cannot move an inch, nor can I do any work without the help of my caretaker because none of my limbs function. Only 50% of my respiratory system is functional yet I listen to fast, peppy music that keeps me up-beat, optimistic and full of energy. I use this energy to break the shackles of my disabled condition. My current turnover is a staggering 7 billion good wishes and blessings from people all around the world. This is what I said to a curious someone who wanted to know my earnings. Yes, I do receive generous amounts from big corporate companies for every motivational seminar I conduct. Most of the amount is chanellised towards similar programs for the underprivileged sections of society. Every fibre of my being stands for this noble cause, as I believe that total commitment is paramount to reach the pinnacle of success. The diehard optimist  I feel in each one of us lies a spark of fire which lights up in the darkest hour of adversity. All that lies behind us and all that lies in front of us is too little in comparison to what lies within us. When we realize this we find that limitations are nothing but imaginary. We can overcome all our hardships and turn our dreams into reality. Obstacles strengthen our resolve. Struggles help us build character. Every challenging situation actually brings us closer to our inevitable victory. - Girish Gogia

Like this story? Or have something to share? Write to us: contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

About the author: Girish Gogia is an interior designer who met with a severe accident that left him paralysed neck downwards. He has, however, found a new calling as an inspirational and motivational speaker.

MY VIEW: Here’s All That I Have Learnt about Down Syndrome and Its Treatment in India

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Down syndrome is a set of physical and mental traits caused by a genetic problem that occurs before birth. Children who have Down syndrome tend to have certain features such as a flat face and a short neck. They also have some degree of intellectual disability. This varies from person to person. But in most cases, it is mild to moderate. Down syndrome is a lifelong condition. But with care and support, children living with the condition can grow to have healthy, happy and productive lives.

I am a Pune-based software engineer and I fought a long legal battle to adopt a child named Binney, becoming India’s first single parent to adopt.

bennie5 Binney is suffering from Down syndrome. Initially, he developed the very same symptoms as in other cases of Down syndrome, but now his situation is such that many people can’t even believe about his condition. Binney is 2-year-old now and he’s growing and responding like other “normal” kids of his age. His birth parents left him in an orphanage because they thought that there is no hope for the child. But this is a completely wrong perception. In India, people rely only on fast and easy treatment access, which is not possible in case of any genetic abnormality because the recovery process is gradual. So nothing can be done at once but the parents’ sincere and constant efforts can surely lead to a miracle. There are three types of Down syndrome – trisomy 21 (nondisjunction) (accounts for 95% of cases); mosaicism (accounts for only about 1% of all cases) and translocation (accounts for about 4 % of cases). Regardless of the type, all people with Down syndrome have an extra critical portion of chromosome 21 present in all or some of their cells.

This additional genetic material alters the course of development and leads to the characteristics associated with Down syndrome.

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Source: Sadasiv Swain/Flickr
Down syndrome occurs in people of all races and economic levels, though older women have an increased chance of having a child with this condition. Since many couples are postponing parenting until later in life, the incidence of Down syndrome conceptions is expected to increase. Therefore, genetic counselling for parents is becoming increasingly important. In India, various organizations are primarily involved in the treatment of Down syndrome and have witnessed miracles in a few cases. Potential treatments include early intervention; alternative therapies involving a wide range of theories and treatment practices which parents should discuss with their doctors; occupational therapy that facilitates the development of fine motor skills like feeding, dressing and grooming; physical therapy to facilitate the development of gross motor skills like posture and proper foot alignment; and speech and language therapy.

This can help infants and toddlers begin learning to communicate and help children and adolescents progress in speech and language.

[caption id="attachment_49538" align="aligncenter" width="1200"]bennie6 Recommended reads to know more about Down syndrome[/caption] Due to advances in medical technology, individuals with Down syndrome are living longer than ever before. Now, with recent advancements in clinical treatment, most particularly corrective heart surgeries, as many as 80% of adults with Down syndrome reach the age of 60, and many live even longer. Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to develop to their full potential and lead fulfilling lives. It is important to remember that while children and adults with Down syndrome experience developmental delays, they also have many talents and gifts. They should be given the opportunity and encouragement to develop them.

Some of the organization working in this field in India include:

1. Down Syndrome Federation of India - Run by Dr. Rekha Ramachandran Phone: +91-44-4211-2249 Email: mathrumandir@gmail.com, rekharami@gmail.com 2. Mindheal Homeopathy Clinic Phone: 022-252 30530, +91-9930363981 Email: crm@mindheal.org – Aditya Tiwari

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Despite Having Two Kids with Special Needs, This Couple Set out to Help Other Parents Like Them

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Their own struggle helped them develop empathy towards others. The empathy, in turn, helped them build a solid support system for other parents of children with special needs. This is the inspiring story of K. Madhu Babu and D. Varija, a Dubai-returned couple and their children – a 9-year-old autistic son, Hem Sreesh, and a 7-year-old daughter Varhsini who lives with learning disabilities.
“Every parent builds a future for their children with education, property, bank balance, etc. In the same way, I wanted to place some responsible people around my children to support them after my wife and I are gone,” says Babu, the founder of a unique and thoughtful organization called Parents Association for Children with Special Needs (PAC).
Sreesh Mandiram, located in Bairagipatteda near Tirupathi in Andhra Pradesh, is the first school started by PAC. The seeds for the project were sown with the formation of PAC in December 2010 by Babu and Varija.

They came back to India with the mission to start an organisation for children with special needs and their parents.

[caption id="attachment_49907" align="aligncenter" width="1000"]pac1 K. Madhu Babu and D. Varija with their children[/caption]
“We often find children roaming on the streets, abandoned by their parents. I feel scared about the fate of my children after us, whenever I see them. I want parents to have the confidence and the assurance that our children will be taken care of even after our deaths,” says Babu.

How PAC is helping parents of children with special needs:

[caption id="attachment_49908" align="aligncenter" width="1000"]A get-together of parents and children A get-together of parents and children[/caption] Here are some examples of situations where PAC has intervened, making a difference in the lives of children with mental disabilities and their parents. A man who was an ophthalmologist died of a sudden heart attack. PAC supported his dependent and shattered wife and counselled her to look past her problems and gave her courage to focus on her child. Today, she is no longer helpless and is working in a state government hospital with her head held high. She is a pillar of support and inspiration for her child. A mother of a girl with special needs lost her husband. Today, with the support of PAC, she’s not only looking after her family but is also taking care of the business and contributing towards PAC. Another woman was left by her husband because of their child’s disability. She took up a job in Dubai to establish a financial foothold for her family. The child, living with his grandmother, was physically and emotionally taken care of by PAC. PAC's first aim has been to unite all the parents, so that they can function as one community, and support and solve each other’s problems. Help of all sorts, be it financial or personal or health-related, is provided to everyone.

The next step is to provide individual assistance, guidance and training to each child, enabling him or her to be able to be independent in the future.

[caption id="attachment_49909" align="aligncenter" width="1000"]Awareness camps Awareness camps[/caption]
“We have children who are mentally challenged, autistic, have cerebral palsy, Down syndrome, and are slow learners. We help children in our school to develop independently, and the first important step for this is to interact with people. We should not put them in four walls. We have a lot to do and we are working on that,” says Babu.
The Parents Association thus started conducting counselling and sharing sessions where mothers assume the key roles and share their experiences.

How the school came about:

[caption id="attachment_49910" align="aligncenter" width="1000"]The school building The school building[/caption] Babu and Varija noted how education for special children was not getting its due, in spite of the fact that it is a significant pre-cursor to later independence and confidence in special children. They realised how parents, due to lack of awareness, financial support or time, are not able to impart the required educational training to their children.
Babu recalls from his personal experience with Hem Sreesh, “By the time my son was diagnosed, he was already taking special therapy in Dubai. We were getting very good results. It was Applied Behaviour Analysis Therapy (ABA). My wife diverted her career to special education and therapies. She started this because if she did a regular job, nobody would be there to take care of our children. She completed her course in B.Ed as well as Special Education in Dubai.”

Eventually, they started the Sreesh Mandiram school near Tirupathi for imparting special education, physiotherapy and ABA therapy, with the help of doctors visiting from a local super speciality hospital called SVIMS.

[caption id="attachment_49911" align="aligncenter" width="1000"]Physiotherapy treatment Physiotherapy treatment[/caption] A day at Sreesh Mandiram starts with prayer, followed with physiotherapy sessions and special education lessons. The afternoon time again includes special therapies (focussing on ABA), speech and occupational therapies, and physical activities to ensure fitness.
“These children are not able to express what they are going through. When they come to the special needs school, they are trained specially on how to get on a bus, how to mix with other children, etc. For instance, my son earlier didn’t know where to go if he is hungry. But my wife has trained him to go to the kitchen if he is hungry, take the plate, put rice and whatever else he wants, and eat. He could not even handle a plate before. But now he’s okay,” says Babu.

The mothers interact with Varija who helps the ladies in forgetting their hardships and in working for the betterment of their children. She guides them on the type of treatment and government policies that can benefit them.

[caption id="attachment_49912" align="aligncenter" width="1000"]School activities School activities[/caption]
“According to government policies, every child is entitled to receive Rs. 500, but that’s too little. My child requires at least Rs. 2,000. So these kinds of problems are all discussed with the parents in the meeting, especially mothers. My wife, who is a certified therapist, also counsels families from neighbouring villages who come and take some training with us and go back,” says Babu.
Doctors, paediatricians ophthalmologists, dentists, dermatologists, and other medical specialists visit the school every 2-3 months and the consultations are for free.

Children here are seen as living gods and are served with love, care, warmth, and respect.

pac7 Unfortunately, Babu and Varija lost Sreesh on December 9, 2015. At the age of 10, Sreesh suddenly got a very high fever one day and it was accompanied by fits. They took him to the hospital but he could not be saved. PAC’s ultimate vision is to implement a lifelong supportive organisation under the Tirupathi temple trust to serve the children. We wish them the very best for this noble endeavour!

Like this story? Or have something to share? Write to us: contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

About the author: Ipsita Sarkar is a freelance writer.

He Lost His Right Arm When He Was 18. Today, He Farms, Drives a Tractor And a Motorcycle Too!

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He lost his right arm while wrestling. But he had to keep a promise he made his mother so he started farming with just his left hand. Today, Madhukar Anna Chidre of Davanhiparga village, Maharashtra, is the owner of 150 acres of land, drives a tractor, a motorcycle, and a four-wheeler too. This is the story of his inspirational journey.
“Jeevanacha khara anand ladhnyat aahe, radnyat naahi (The true joy of life is in fighting, not in crying),” says Madhukar Anna Chidre.

Today, as Maharashtra is reeling under huge numbers of farmer suicides, there is one farmer in Davanhiparga village of Latur district who requests that every farmer speak to him just once before thinking of committing suicide. He claims he can help him solve all his problems.

farmer with one hand (2) Madhukar's father, Chandrakant Chidre, was a farmer who owned 40 acres of land in Davanhiparga village of Latur district of Maharashtra. The land was enough for his family of seven to live well. But droughts made it harder to do so year after year. Madhukar was much loved and cared for by his parents and sisters for two reasons. First, because he was the only son and second, because an astrologer once told the family they should take good care of him as he may meet with a life threatening accident. And so, one day, when he was in Class 7 and came home crying because the teacher had hit him, his mother never sent him back to school. After leaving school, Madhukar Anna started to spend his days playing with friends. He also developed a new hobby – wrestling. Soon, he became a champion wrestler in his village and people started looking up to him. But life took a grim turn when Anna was just 18 – he sprained his right arm while wrestling. Davanhiparga was a small village and there were no doctors there at that time. The local vaidya suggested Madhukar's arm should be tied tightly with a cloth. This proved to be the absolutely wrong treatment. Since there was no blood flow to the arm, it became infected.

When Madhukar was finally taken to a hospital in Karnataka, the doctor had to remove his right hand from the shoulder down in order to save his life.

farmer reading (1)
“I remember how my mother would not let the doctor operate on me. She could not accept the fact that her son was going to be an amputee for the rest of his life. Finally, people had to tie her to a tree to let the doctor save my life by cutting off my right arm," says Anna. He still gets goose bumps as he narrates the story of how he lost his arm.
This incident left Madhukar's father ill and his mother depressed. His mother, Guna Bai, did not eat anything for almost 15 days and Anna could not gather the courage to go in front of her. But finally, when he could not bear to see the pain in his mother’s eyes, he decided to speak to her. Guna Bai told him how she had always wished that someday her son would become a big man and drive his own car. She said she wished the same even now but knew it wasn't possible.
“I promised my mother that day that I would call myself her son only when I had fulfilled all her wishes. I promised her I would buy a car one day and drive it too," says Madhukar Anna.
After this, Madhukar never looked back. He held a hoe in his left hand and went straight to the fields. The year was 1972 and the entire Marathwada area had experienced a drought again.

He started digging his father's drought affected field with one hand.

farmer5 (1)This was not the first time Madhukar was dealing with drought. He was 7 years old when he experienced a drought for the first time in his life. His mother used to cook weeds and grass to feed him and his four sisters. He had seen his father work day and night in the fields to get their life back to normal again. And now, he was following his father’s footsteps, but with just one hand.

“I used to leave my house at 5 am and come back only at 8 pm. People laughed at me initially so I did not want to face them," recalls Madhukar Anna.

farming In the initial years, he worked on four acres and sowed sesame. He managed a yield of 20 sacks of 100 kg each of sesame that year. This was a great achievement for him and encouraged him to work harder. He then bought six bulls for his farm, a tractor and several machines too. And Anna operated all these alone. He also started buying more pieces of land every time he sold his produce in the market.

After he was married in 1980, his wife too supported him wholeheartedly. He started buying more land and farming more vegetables and fruits too.

farmer tractor Slowly, the villagers too started appreciating Madhukar’s work. He kept motivating other farmers during the drought too, saying if he could work with just one arm anyone with two surely could. There were times when he had to take loans but he did not let the labourers in his fields ever be affected by the harsh drought conditions.
“I have 15 women labourers in my farm and they have never worked with anyone else other than me. That’s because even when there is no work on the farm, I pay them regularly to help them support their families," says Anna.
Madhukar also donated 6 acres of farmland to one of his labourers and 4 acres to another, in order to help them become self-sustaining. Today, Madhukar Anna is the owner of 150 acres of land. He grows soybean, sugarcane, lentils, and pomegranates.

He also loves driving his Bullet motorcycle and says it makes him feel young.

farmer bike Anna never forgot the promise he made his mother of buying a car either. His mother's joy knew no bounds when he finally did so in 1990.

He now drives a four-wheeler too with his left hand and is proud of having fulfilled his mother’s dream.

farmer driving

Madhukar Anna’s three sons have followed in the footsteps of their father and became successful farmers. Today, one of Madhukar's grandsons is a doctor, another a teacher, and yet another a software engineer at Cognizant, Pune.

IMG-20160315-WA0016
“He is 76 years old now and still starts his day at 5 am. I have never seen him sitting idle. Every day, when he comes back home from his farm, at least 10-15 farmers are waiting for him to take his suggestions about farming. I am so proud of him”, says Kishor Chidre, Madhukar Anna’s grandson who works with Cognizant.
Madhukar Anna cannot see a single farmer sitting idle in his village. People scramble to work if they see him coming towards them.
“I have started a betting system in the village. If someone complains that they cannot do farming, I challenge them by giving my own land to them and ask them to work there with me for a month. They see the results and automatically start working efficiently. I have tried this on drunkards too and it worked on them," says Madhukar Anna.
farmer1 (2) Madhukar Anna Chidre, who has been felicitated by the Maharashtra government and also awarded the Krushi Bhushan Award, is truly an inspiration to each one of us to never give up in the face of any struggle in life.

Like this story? Or have something to share? Write to us:contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

TBI BLOGS: Hindi Cinema’s First Ever Quadriplegic Actor is Now Making a Film

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A quadriplegic, also known as tetraplegic, suffers from paralysis caused by illness or injury that results in the partial or total loss of use of all four limbs and torso. Jitendra Biswal, a quadriplegic, has just made and acted in a film about a person with such extreme disability and his relationship with a normal girl.

Hindi cinema has indeed seeped into every aspect of Indian society. With a large viewership base, it can, in the right hands, become a tool to bring about positive changes in society. A new film, to be released in April, aims to do just that - bring about social awakening and awareness. The Desire is a short 35 minute film, which revolves around an individual with extreme disability and his relationship with a normal girl.

What is unique about this film is that the lead is played by Jitendra Kumar Biswal, a quadriplegic himself.

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When a 7-month-old Jitendra Kumar from Odisha came down with measles many years ago, the doctors administered a wrong dose of antibiotics, leading to the damage of his muscular system. The prognosis was poor and he wasn't expected to live beyond the age of 20. But today, he is 47 years old and ready to debut in his first film. Although he is bound to his automatic wheelchair all day and requires an attendant or two at most times, Biswal has to his credit a Bachelor’s degree in Economics, a Bachelor’s in Law, a Post Graduate Diploma in Computer Applications, and Certification in Business Management. All this despite the fact that he raises his right forearm to pick up a pen to write with utmost difficulty.

The upcoming film, The Desire, is the brain child of Biswal.

Desire by Quadriplegic Avinash Nanda

At a time when lack of funds was an issue, Mumbai based ad-filmmaker Avinash Nanda, agreed to help Biswal out. Director Avinash Nanda has directed over a hundred advertisements for national and international brands. He agreed to not only direct the film but also got entrepreneur friends, Rajinder Singh Bhatia and Rajesh Mohanty, to fund it. Swapna Pati, acclaimed Oriya actress and social activist, agreed to do the lead female role.

In a world that is often hostile towards the disabled, the film aims to create awareness that the disabled are no different from so-called normal people when it comes to emotions. They have similar feelings and desires and seek honest relationships. And isn’t that what makes us all human? We all need peers, buddies, lovers, and spouses. In Biswal’s words, "It is time society recognizes and respects this.”

“The message of my film is clear. Like any other human being, people with disability have feelings, emotions and desires."

Desire by Quadriplegic Avinash Nanda

In the final stages of production, the film is expected to be released by end-April. Avinash Nanda aims to send this film to all the major international film festivals.

The Desire is truly an emotional journey. Biswal's hope is the film will help bring about a paradigm shift in people’s attitude towards the disabled.

All Images Courtesy Jitendra Kumar Biswal

Like this story? Or have something to share? Write to us: contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

About the author: With a degree in Sociology and Economics, Ramya is a blogger who writes on society and culture, hoping to bring about positive impact on as many people as possible. She runs a blog called www.meotherwise.com

TBI BLOGS: Heartbroken at First, Mom Changes Her Perspective on Autism. She’ll Change Yours Too!

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What is autism? Is it a disability? Or is there another side to the coin that we haven't considered? Time to refresh our perspective.

"He has Autism.”

The diagnosis sounded like a death knell. I could barely breathe!

I lashed out at the doctor. How could my beautiful son have autism? His limpid eyes, his soft skin… how could it be?

The tears didn’t stop for a long time. The pain was unbearable. Like a pendulum, my emotions swung from disbelief to grief. I hugged Mohit, wanting to protect him with all my might.

I was determined to get rid of this thing called ‘autism.’ Armed with my husband’s unflinching support, I marched ahead to throw this cloak of autism ‘off’ my son. Support from the wonderful members of the Sri Sathya Sai Center in Seoul kept me going.

I prayed fervently for a cure and left no stone unturned in research. Biomedical treatment, Cranio sacral therapy, ABA, Sensory integration, Vision therapy, Secretin, Chelation, Swimming with dolphins - we tried everything.

For 17 years, I continued my fight for a ‘normal’ son. I worked 5 hours a day teaching him language skills and doing table top activities. If I worked hard enough, he would be complete. But guess what? Each door I banged was a dead end.

In the distance, an unexpected door opened for us. A program in USA taught me that autism is a neurological disorder, not a disability. Affected children and individuals don’t grasp the concept of ‘us'. Hence, social interactions and communication are difficult for them. The brain is differently wired, and more magnificently. It’s nobody’s fault, certainly not the mother’s.

I finally stopped swimming against the tide. The fight was replaced by acceptance and understanding - of the person behind the label. All those years I focused on the ‘autism’. But who was the real Mohit?

Mohit emerged as a funny, loving boy who loves Yesudas and also the dhinchak Salman/Govinda numbers, who laughs while watching Mr Bean’s antics, who loves unconditionally, and who is the wisest person I know. And he has emerged as an artist.

[caption id="attachment_50707" align="aligncenter" width="750"]One of Mohit's paintings One of Mohit's paintings[/caption]

In his emergence, I discovered myself too. It wasn’t a planned journey. But it made me who I am. Thanks to these experiences, I can support other families and train professionals.

April is Autism Awareness month. And I want to address a myth - that autism is a disability. It’s not!

Respect for individuals and children with autism

What is our definition of a normal person? Someone who can perform mundane tasks smoothly, right? And what is a person who can perform complex tasks and look at different perspectives, called? Special. Unique.

Every individual with autism is unique. He might not speak a lot, but he could be a master chef, a marathoner, an incredible artist, or just a regular tenth grader working his head off for the exams. He could be a walking-talking encyclopedia, or someone who can solve complex maths problems in his brain. Or he could just be a regular next-door person. But I can assure you of one thing - these individuals are the smartest, most sensitive and caring people I have known.

Watch this insightful video for answers on your questions about autism.

[embedvideo id="N1WCG24XSn4" website="youtube"]

This leads us to another point: Have we diluted the meaning of the word ‘special’? Almost always, when associated with a person of different needs, the term evokes waves of sympathy. We forget that these people were (and still are) considered special because of their abilities. Basic motor and speech skills are not as developed. But heightened senses of hearing, analyzing, creativity, and intuition compensate for them. Don’t take my word for it. Peter Thiel, founder of PayPal, said that Aspergers (a form of autism) can be an advantage in Silicon Valley. The condition is a plus for innovation and helps people avoid the imitation gene. Elon Musk declined foraying into stem-cell therapy because people may use it to ‘cure autism’, something which he is strictly against.

So, how can you support individuals with autism? Don’t worry. You don’t need to attend parent support meetings or volunteer at autism treatment centres to contribute (though we would love it if you did). Just implement these basic human behaviours:

Don't laugh at them

Individuals with autism indulge in certain behaviours to cope with anxiety. These include rocking, playing with their hands, shaking something and watching it move.

We all engage in ‘stimmy’ behavior like shaking our legs and cracking our fingers. The difference is that we are aware of this behaviour and can control it. These wonderful people cannot.

Accepting differences is difficult. But not accepting doesn’t mean the same as laughing at them, does it?

Don't call them 'pagal'

I’ve heard parents say this! Can you believe it?

However, most parents see the immense potential in their child to do something remarkable. Please don’t hurt these families’ feelings by calling their children ‘pagal’ or gesticulating that they are ‘mad’.

Don't say condescending things in their presence

Some people on the autism spectrum might not speak. But each and every one of them understands… everything.

Imagine how you feel when someone speaks disrespectfully about you in front of you. Now imagine you doing the same to these individuals who understand it. Think of how much you damage their self-esteem.

Don't stare

We feel terrible if somebody stares at us, isn’t it? It is no different for them (they understand everything, remember?)

A hundred people crowd around a child or adult who is experiencing a meltdown. If you can’t help, please move on. Please respect the child and the parent.

[caption id="attachment_50711" align="aligncenter" width="650"]Children and teachers at SAI Connections enjoying Holi Children and teachers at SAI Connections enjoying Holi[/caption]

I feel the pain of mothers who struggle with their affected children in trains, in buses, on the streets. Their daily life is a battle. Yet, they continue to smile and go through life with brave hearts and unflagging spirits.

But I also feel that parents struggle because of society’s perceptions more than their own child’s challenges. Society finds it difficult to accept that individuals with autism are different, not disabled.

Do you want to make the world 1% better for these beautiful individuals and their families? Just remember the above points and you are good.

People on the autism spectrum transform the lives of those associated with them. I know, not just because of my son, but because every parent I have met, agrees. Our children have taught us what unconditional love means. This love keeps us going, long after we feel like we have no strength left. All I request from you, on Autism Awareness Day, is to respect their uniqueness. They will change your perspective on life too. Plus, they deserve a shot at living a dignified life like us. Don’t you agree?

Like this story? Or have something to share? Write to us: contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

Sarthak Has a Rare Degenerative Condition. But He’s Becoming a Doctor to Help Others.

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Sarthak Kamath may be physically challenged but he has a lot more to do in life than worry about what he can’t do. The 24-year-old with a neuromuscular disease is now on his way to becoming a doctor so he can help people. Sarthak Kamath had a rough start in life. When he was in Class 7, his school refused to keep him enrolled anymore. The reason was his neuromuscular disease, Duchenne Muscular Distrophy, which has him bound to a wheelchair. The school wasn’t willing to make the necessary changes to accommodate a disabled person. For six months after this incident, Sarthak was to sit at home. His mother, Sneha Kamath, was not one to give up though. She frantically looked for a school that would take him. “There were really few schools that would accept me. Most of them said they're not ready to adjust for just one disabled student,” Sarthak recollects. But then, the search wasn’t in vain. At the Acharya Shri Mahapragya High School in Bengaluru, the principal Parvathy Vishwanath welcomed him with open arms. Sarthak finished his SSLC there, and moved on to the Seshadripuram Composite Pre-University College to finish his Class 12 and Bachelor’s in Science.

Today, he is on his way to becoming a doctor. He finished his final year MBBS from MS Ramaiah Medical College.

[caption id="attachment_50626" align="aligncenter" width="1200"]sarthak kamath Sarthak with his friends at M S Ramiah Medical College. All are doctors
now.[/caption] He began his internship in community medicine recently at his alma mater, and it has him motivated to keep going. “It’s a one-year internship program at the hospital, where I will be posted in different departments for a month each,” he says, “I will be a full-fledged doctor with a certificate after I complete this internship.” Sarthak chose to do MBBS not only because of his undying curiosity about the functioning of the human body, but also his desire to help people.
“I used to think, if so many bad things have happened to me, they could happen to anyone. I thought that if I could become a doctor, I could counsel them and treat them.”
Part of his courage to dream comes from knowing that he isn’t the only one trying to overcome his disability. Recently, at the India Inclusion Summit 2015, he was inspired by the discussions on inclusion and the heartwarming stories of the disabled overcoming challenges.
“The host of the Summit, Deepa Narsimhan, has spinal muscular atrophy, a variant of Stephen Hawking’s disease. But she heads a software company where they provide jobs for the physically challenged. This year we had plenty of such people there, they were really inspiring.”
It’s no wonder then that the 24-year-old takes inspiration from Stephen Hawking. “Even though he has such a crippling disease, he has managed to survive it. The mean age of survival for his condition is just two years, but he has actually survived more than that. Despite that, he is one of the most brilliant minds in the world,” he says. “David Hartman, the world’s first blind doctor, is also a great inspiration for me. He had been advised to take up jobs where he didn't need to put in much work, instead of taking up medicine. But he still took up medicine and is a psychiatrist now.”

Sarthak praises his family for being supportive and helping him through tough times.

[caption id="attachment_50615" align="aligncenter" width="6016"]sarthak kamath Sarthak Kamath with his family[/caption] “Nothing would have been possible without my mother,” he says, smiling. “While I was sitting at home for six months, she went to every school to look for one where I could go. When I was admitted to ASM High School, she even worked there as a teacher for a year to help me get accustomed to the place!” Besides her, Sarthak thanks his grandmother who is always at home tending to his needs. “My father has also been a source of encouragement for me, and so has my sister,” he adds. In his neighbourhood and family, he is an inspiration to everyone as the boy who stopped at nothing to achieve what he wanted.
“It was very easy for him to say, I can’t do this, why should I study?” says Sneha, with a proud smile, “But he was determined from the start. He has lived up to his name; Sarthak in Kannada means fulfillment - and that’s exactly what he has done.”
Sarthak is known for his ability to smile through every situation, according to Sneha. “He is also very systematic, in studies as well as leisure,” his mother says. “Even if he is tired, he finishes whatever he has to do. He does not keep anything for tomorrow, does not procrastinate. He sets up time for everything and sticks to it.” His sister Sanmita adds, “He’s also an ardent football fan. Even though he can’t play, he follows the game intently. That’s what I really appreciate about him. He does not let his disability get into his way for anything.” Sarthak wants to raise awareness about disability and the lack of suitable infrastructure for the physically challenged. He wishes to bring a change in people’s perceptions about being challenged.
“Most people think that the disabled can't do anything, and that they are to be looked down on,” he explains, ”But the truth is, because of this phenomenon called neuroplasticity, if one side of the brain is not developed properly, the other side will be developed much better to compensate for it. This is why we hear of how a blind person has a better sense of hearing than a person who can see and hear.”
Schools and colleges in India are still far behind in being disabled-friendly. “I don't think schools and colleges are welcoming towards physically challenged people,” he says, “My mother and I realised that when we were looking for schools. They didn't want to make any adjustment for one person. But the school I went to (ASM) was very good. They even shifted my class to the ground floor for me.” Finding the right school did make all the difference, though. It gave him not just the academic success that he needed, but the inclusiveness helped him gain confidence and the voice to speak up for disabled in the country.
“There should be a law that mandates educational institutions to provide at least a ramp for physically challenged students,” he says. “In college, I was the first disabled person there. Now in MS Ramaiah, after seeing me for three-four years, they have built ramps in the new college buildings.” He adds that theatres, malls and places of entertainment too need to be disabled-friendly.

When it comes to leisure, Sarthak is both musically and intellectually inclined. He is a keyboard player and has performed both in college and school.

[caption id="attachment_50621" align="aligncenter" width="1200"]sarthak kamath Sarthak with his teacher and head mistress Parvathy and Narendrababu , MLA[/caption] He was even part of a band. “But I don’t have much time for my hobbies since I started medical college,” he says. “I used to also play chess and participated in inter-collegiate tournaments. I love reading and participating in quizzes too.” His mother adds, “He topped his college in a quiz competition recently and came second in the zonal levels. He takes part in cultural activities in college. He is pretty much an all rounder!” Sarthak calls himself the man who lives in the present. “I don’t think about the future,” he smiles. “Not knowing the future is more interesting.”

Like this story? Or have something to share? Write to us: contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

How One Story Written by Us & Shared by You Impacted Orphans, Law Students, Even Film Directors!

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Every time our readers like and share TBI stories they are not just spreading positivity and hope, they are also creating an impact that may not at first be visible. Here’s one such story, of a young adoptive parent to a special child, which went viral and created ripples greater than we had imagined. On January 1, 2016, Aditya Tiwari became the youngest single adoptive parent in India by legally adopting a special child Binny. He named him Avnish.

Aditya fought a 2-year-long battle against the system and society to become a single father.

1 On January 12, 2016, we wrote about ‘How Aditya Fought All Odds to Become India’s Youngest Single Parent to Adopt a Special Child’ and, like always, our readers helped us spread this positive story like wildfire. The article got lakhs of views and 33,000+ shares too (so far). Avnish turned two on March 16, 2016. On this occasion, his father Aditya could not thank you all more for the huge impact you created simply by clicking ‘share’ on his story. Here are some of the things that have happened in his life since the story was published on TBI:

1. Parents of children with Down’s Syndrome reached out to him for inspiration and help.

This was a message from a single father to Aditya after reading the story: IMG-20160319-WA0011 (1) Aditya received loads of calls from parents who thought life had been unfair to them by giving them children with Down’s Syndrome. But here was a young single man who adopted a child with Down’s Syndrome and told the world it was a blessing for him. “Parents of children with Down’s Syndrome called me from almost every part of the country and told me how my step has given strength to them,” says Aditya.

2. Aditya benefitted too. NGOs and physiotherapists reached out to support him.

AT1 The NGOs that had special kids helped him learn more about the disability and ways to deal with it, whereas many physiotherapists offered to treat Avnish for free. “Ms. Rekha Ramchandran from Down Syndrome Federation of India called me after reading your article. Since then she is supporting me in any way possible to nurture Avnish,” Aditya informed The Better India.

3. The legal struggle and victories inspired many citizens.

https://www.youtube.com/watch?v=szyV0HOqJoY#action=share In our previous article we had explained how Aditya had to fight a legal battle because the age bar for single adoptive parents in India was 30 and he was just 27 when he decided to adopt Avnish. He kept fighting the system until the age limit was reduced to 25. “Atul Vidyalaya, Valsad, Gujarat, invited me as a chief guest on January 26, 2016. I was surprised by this and asked them why I was selected, as I had done nothing other than just adopting a child. The Principal replied that it was not just an adoption but it was a trend-setting decision and the struggle behind it makes me a hero. He said he would like the children of his school to become like me. That was the biggest compliment I could ever get,” says Aditya.

4. Thirty other children like Avnish, who were at the same orphanage as him, were also impacted.

orphans

During his struggle to adopt Avnish, Aditya came to know about 30 other kids who were illegally being sent to foreign countries. The adoption agency was reported and its licence was cancelled. These 30 kids are legally registered now and a few of them have also been adopted.

5. HIV positive children will also have a home now.

bennie5 After word spread, an NGO called Palawi from Pandharpur, Maharashtra, which had 98 HIV positive children, called Aditya. They told him these kids were not allowed to go to regular schools and were not accepted by society either, so the NGO had an in-house school and orphanage for them. However, these kids also long to have families but the NGO does not have permission to give them for adoption. Aditya, who is well-versed with adoption proceedings and laws by now, asked them to send all the documents immediately. He then forwarded them to CARA and the Central Government. Aditya is now fighting for the rights of these kids. “It used to be that previously, if a child was born to an HIV positive mother, he/she used to be infected too. But now, with proper medication and good care, these babies become negative within 18 months. There are many parents who are ready to adopt these kids but we do not have the permission to give them for adoption. Being in a remote area, we explained our concern to the local authorities but did not know any other further procedures. My mother read the article about the legal battle that Aditya Ji fought for Avnish. So we called him to seek help. And he has been a great support since then,” says Dimple Ghadge of Palawi.

6. Law students got to learn a lot.

bennie3

Aditya’s story became an interesting project for law students, who found an opportunity to learn about the adoption law through him. A few documentaries have already been made by law students on Aditya and Avnish - among these are two by LLM Pune University and Jai Hind College, Mumbai. Bhopal Jagran Lake City University is also making a film on them.

7. Foreign nationals sought help for adoption.

[caption id="attachment_50427" align="aligncenter" width="720"]IMG-20160319-WA0007 Friday magazine- UAE[/caption] Aditya’s story reached foreign shores, and was also published in several magazines of UK and U.A.E, after which many foreign nationals called him to seek help with the adoption procedure in India. Aditya was more than happy to help them.

8. Aditya was the first man to be presented the ‘Real Life Hero’ award by his company, Barclays, on Women’s Day recently. Aditya takes pride in telling this to us.

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9. Film makers have started contacting Aditya.

bennie1 You might soon watch a film based on the life of Aditya and Avnish – a well-known Bollywood production house and a regional production house too have contacted him for the same.

10. The most wonderful impact.

binny Binny, who is Aditya’s son Avnish Tiwari now, has shown tremendous improvement since he became a part of Aditya’s family. “I met the parents of a 10-year-old child with Down’s Syndrome before I adopted Avnish. They told me how difficult it is to raise such children. Avnish had 70-80% Down’s Syndrome. The doctors told me that he would never be able to walk in his life. But in just three months it seems his Down’s Syndrome is just 15-20%. He can hold and stand and tries to stand without support too sometimes. The parents of the 10-year-old child were surprised to see this and have invited me home to help them. My son has set an example for everyone,” says Aditya with a smile.

Like this story? Or have something to share? Write to us:contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

TBI BLOGS: The Story of Kishore, Who Fought Poverty & Even Polio to Become a Leading Gym Trainer

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A dynamic and highly energetic gym trainer, V. M. Kishore Kumar personifies the example of victory over nature’s predicament. Read the story of how this young man worked extremely hard to triumph over both poverty and polio. It is easy to give up and blame circumstances for one’s shortcomings, but "the joy of achieving is only felt when you persevere through life to overcome difficulties." This joy only comes with hard work, sacrifice and a lot of support and encouragement. A dynamic and highly energetic V. M. Kishore Kumar personifies the example of victory over nature’s predicament. Kishore grew up in Anantapur, Andhra Pradesh, and belongs to a very poor family. He is  the son of an uneducated truck driver and a housewife and is the eldest of three brothers.

Kishore, at age five, was diagnosed with polio due to the lack of proper medical facilities in the district. He suffered this major setback early in life but was always keen to move on from it and complete his education despite the polio.

Then and Now images of Kishore from 2007(Left) and 2016(Right))

Then and Now images of Kishore from 2007(Left) and 2016(Right)

He did so and after finishing Class 10, Kishore looked for a higher purpose. This purpose began initially with the idea of maintaining an enviable physique despite his inability to use his legs. The young 16-year-old took to body building in 2000. He began training with basic free hand exercises. The family, particularly his mother, was concerned and suggested that he stick to completing his education and getting a government job for a better life.

His father, on the other hand, was very supportive of the idea and personally got involved in training Kishore whenever he could. He suggested that he continue to do basic free hand exercises. That would help him grow stronger and build stamina. Kishore soon found himself a pair of grinding stones and a rod, which he used for his weight training.

After training on his own, Kishore participated in the District Body Building Championship for Physically Disabled and won this tournament twice, in 2001 and in 2002. Later, he participated at the Mr. Rayalseema competition in 2004 and in the Mr. Andhra competition in 2007, securing second spot in the latter.

It was the year of 2007 that Kishore sees as a pivotal point in his life.

Kishore ensuring his pupil trains right

This was the year his hard work and never say die attitude was noticed by Rural Development Trust (RDT), who offered him a role as their Gym In-charge and senior trainer at their Gymnasium at the Anantapur Sports Village (ASV), an irresistible offer that Kishore had not the faintest hint of.

Accepting this opportunity, Kishore took office on the 3rd of April 2007, and since then he has been a beacon of light to many youngsters. He continued his passion for body building further, by participating in the Mr. Andhra contest yet again, ending up as the runner up at the competition two years straight in 2009 and 2010. Later, he participated in the South India Physically Handicapped Body Building Championship in 2011 and 2012, taking 4th and 3rd place, respectively.

Kishore continued to train people, young and old. And in 2012, he saw his first pupil - a 68-year-old male, win the Mr. Rayalseema competition in the Masters Category. Moreover, exactly 10 years after winning the prestigious Mr. Rayalseema himself, Kishore was crowned champion again in 2012, however this time with two more of his pupils securing 2nd & 3rd positions. His highlight as a coach came last year when two of his pupils won Mr. Rayalseema and another two secured Runners Up positions.

RDT has had a big role to play in the transformation of Kishore’s life, as they noticed the promise that he had as a youth and thus offered him a job which took into account his passion for the gym and weight training.

Kishore overseeing another of his pupil's training
Kishore shares, “Now my polio stricken legs are the least of my bother. I have also left behind the uneducated past of my family by completing my MA in Public Administration, and I look forward to getting a PhD to bring pride to Mother and late Father, whom I lost in 2011. RDT offered me a platform to prove to the world that we can overcome our difficulties in life, despite disabilities like polio and I hope to make them proud by achieving my dream of participating at the Paralympics as a power lifter and also participating in the Mr. India and Mr. Universe competitions.”

Like this story? Or have something to share? Write to us: contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

Refused by IIT, This Blind Man Went on to Become an MIT Grad and CEO of a Rs 50 Crore Company

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He is the 23-year-old blind CEO of the Rs. 50 crore Hyderabad-based Bollant Industries. The company employs disabled and uneducated people to manufacture eco-friendly disposable packaging products.

Srikanth Bolla's life was never easy. He faced discrimination because of his disability all his life. When he was born blind, the villagers in Sitaramapuram in Andhra Pradesh advised his farmer parents to let him die. His parents, to their credit, paid no heed. At school too, he would often be pushed to the last bench and would not be included in active sports. Yet, this didn’t deter Srikanth, who excelled in studies and topped the Class 10 board exams in his school. At the Intermediate level, when he wanted to opt for Science, the Andhra Pradesh Education Board refused to grant permission. It said that Arts was what the only stream the blind could take up. Srikanth filed a case and, after a six month wait, the Board agreed to let him pursue Science. Srikanth topped his Class 12, securing a 98%.

The next big hurdle came when he decided he wanted to study engineering at the prestigious Indian Institute of Technology (IIT). He faced discrimination yet again when he was denied an admit card to the IIT entrance examination. That’s when Srikanth decided, “If IIT doesn't want me, I don't want IIT either!” He applied to schools in the United States for an undergraduate programme and secured admission in four of the top schools - MIT, Stanford, Berkeley, and Carnegie Mellon. He eventually chose MIT and became the school's first international blind student.

"The world looks at me and says, ‘Srikanth, you can do nothing.’ I look back at the world and say ‘I can do anything’."

Srikanth Bolla, the Blind CEO if Bollant Industries
Image Source: from INK  Talks

After graduating from MIT, Srikanth decided to do something about the discriminations faced by the disabled in our country. Giving up corporate opportunities in America, he came back to India and started Samanvai, a non-profit organization in Hyderabad, to provide individualized, need-based and goal-oriented support services to students with multiple disabilities. He promoted Braille literacy, a digital library and a Braille printing press/library to provide tutorial services for such students. Through Samanvai, Srikanth has managed to mentor and nurture over 3,000 students so far.

As a next big step, he decided to look at the issue of employability of the disabled. In 2012, Srikanth started Bollant Industries Pvt. Ltd., with the aim of providing livelihood opportunities to the physically challenged. The company manufactures eco-friendly products such as areca leaf plates, cups, trays, and dinnerware, betel plates, and disposable plates, spoons and cups. The company also manufactures adhesives and printing inks/printing products. So impressed was angel investor Ravi Mantha with Srikanth’s business model and vision, that he not only invested in the company but is also Srikanth's mentor. Today, Bollant employs over 150 disabled individuals and has five manufacturing units. Its annual sales have already crossed Rs. 70 million.

For the future, Srikanth has a vision of building a sustainable company with a workforce comprising 70% people with disabilities. He sure has come a long way in changing people’s perceptions about the capabilities of the differently abled.

Featured image source: Sciencenet

Like this story? Or have something to share? Write to us: contact@thebetterindia.com, or connect with us on Facebook and Twitter (@thebetterindia).

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