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‘I Am Not Asking for Charity’– the Man Fighting for Disabled-Friendly Screening at Indian Airports

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Rajesh Bhatia writes about his experiences at airports as an above-knee amputee, and why he started a campaign asking the Bureau of Civil Aviation Security to make security procedures inclusive. I am an above-knee amputee since 1992, when I lost my leg to a fatal road accident. After the initial trauma, I marched ahead in my life and rose to among the top most echelons of one of India’s largest multi-national companies. I fly frequently for work, both domestically and internationally from several Indian airports.

Each time I pass through the security check points at the airports, I am treated like a criminal by CISF, the security staff, just because I use a prosthetic limb (artificial leg) for my mobility.

Having not received any training on the screening of persons with prosthetics, the security staff is generally clueless on how to handle my screening. I am asked and many times, even forced, to strip and to remove my prosthetic because they suspect that I might be hiding a gun or a knife in my prosthetic. The security staff then picks up my prosthetic and puts it on the x-ray machine as if it is a piece of luggage, while I am left immobile and in a state of agony praying that I receive my prosthetic undamaged. I have to then go through the process of putting on my prosthetic, which by then does not have enough suction to stay in place thereby putting my mobility and safety in jeopardy.
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Let me tell you that the suction of a prosthetic does not allow even the air to pass through it. Then how can I hide a weapon in my prosthetic? Imagine being harassed this way since October 2012, each time I have undertaken air travel! How would I feel? Even several women amputees, including Sudha Chandran, have been harassed in this manner. On October 8, 2013, while I was leaving with my family for a vacation to Thailand from Delhi’s IGI airport, the metal detector beeped owing to my prosthetic. I showed them my disability certificate. Yet the security staff seemed confused. After turning down my request for pat-down or ETD frisking, they forced me to strip in front of their entire staff and a CISF officer asked me repeatedly if I got married before or after my amputation. I want to make it clear that CISF is not to be blamed. It is a puppet in the hands of Bureau of Civil Aviation Security India (BCAS), the organization that has laid down such humiliating screening procedures for PwDs. The dictate of BCAS to CISF to regard PwDs, including amputees who use prosthetics, a bigger security risk; to ask them to strip and remove their prosthetic and, to make wheelchair users stand up - as they all may be carriers of explosives and weapons - is a violation of their human rights. I have been informed by several PwDs that they do not undertake air travel for the fear of being humiliated. It has been my goal since my first harrowing experience with frisking in 2012, to be the voice of millions of PwDs in India. I would never like them to go through similar trauma with airport security. For that reason I launched my petition against BCAS on change.org and even my campaign’s Rajesh Speaks’s Facebook in 2013. I have not received any response from BCAS from the signatures on my petition. I have also written several letters to former PM Manmohan Singh, PM Narendra Modi, Ministry of Civil Aviation (MoCA), CISF, CCPD (Office of the Chief Commissioner of PwDs) and others. Yet I got no response from them and in exceptional cases when I did hear back from them, including to my RTI and my letter to PM Narendra Modi, their offices ignored my concerns and simply passed on the buck to another organization. I have travelled worldwide including to Europe, Italy, France, Germany, Ireland, Romania, Belgium, United States and Russia. The airport security at each one of these places treats me respectfully and simply frisks me with a pat-down process. The entire screening procedures for PwDs and the insensitivity of BCAS and CISF need a humane face. They need to be sensitised. Isn’t that more important than building fancier airports?

I am not asking that the national security & the security of fliers be compromised. I am asking BCAS to:

1) Lay down clear guidelines in its Standard Operating Procedure, SOP, for the security screening of PwDs; 2) Sensitize and train CISF in the respectful screening of PwDs; 3) Install full body scanners at Indian airports of the kind that are used at the airports in United States; 4) Enforce zero-tolerance policy for any discrimination of PwDs. Raja Srivastava, Additional Director General BCAS, had given his word to me at a CISF training workshop on March 30, 2014, at which I was invited to present my thoughts on the frisking of people who use prosthetic, that he would be open to incorporating my suggestions in the SOP for screening of PwDs. However, even he has backed out of his word to me. In May 2014, my sister Smiti Bhatia and I had conducted extensive research on the international security norms for PwDs and had written a manual under the guidance of disability advocates, on the “Screening Guidelines to be Followed by CISF for PwDs at Indian Airports.” The manual abides by the world class screening procedures, and by the language of Convention of Rights of Persons with Disabilities (CRPD). It was also laid out by our teammate in a PPT with visuals. I had handed over the manual to Mr. Ajay Kumar and Mr. O.P. Singh, senior CISF officers, in June, 2014. They had approved the manual. However, BCAS has not included it in its SOP.
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In May 2016, Supreme court had passed a judgement in Jeeja Ghosh’s case against her discrimination by Spice Jet that “there should be a full recognition of the fact that persons with disability were integral part of the community, equal in dignity and entitled to enjoy the same human rights and freedoms as others.” Jeeja Ghosh has Cerebral Palsy. She was de-boarded by the flight crew because of her disability. By violating the human rights of PwDs, BCAS is in violation of the Supreme Court’s judgement. It is a shame that such repeated assaults on the most vulnerable citizens of India are allowed in a democracy. Following the ruling, Supreme Court had directed Director General of Civil Aviation to consult with civil society to ensure that air travel was non- discriminatory for PwDs. On June 27, 2016, the disability advocates, including Smiti and I, had submitted our comments, including our manual to DGCA. We have not received any response from DGCA.

I am asking BCAS and MoCA that my rights and those of PwDs be restored. I am not asking for charity. I am a law-abiding, tax-paying citizen of India.

I want you all to stand up and support me by signing my petition here. I need at least 100,000 signatures to persuade BCAS and MoCA to enforce the changes that I am seeking.

Also check out Rajesh Speaks on Facebook. (Written by Rajesh Bhatia)

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Light Bulbs, Placards, Sign Language: Few Things Used in a Delhi Café Run by the Differently Abled

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A smiling face greets you on entering, the dishes here bear distinct codes and signs, the customers are given notepads to write their orders, there are placards for frequent requests, and each table has a light bulb, much like those in aircraft, to call out for the servers. Welcome to Echoes, a café in Delhi’s Satya Niketan area that employs people with hearing and speech impairment.

Started in December 2015, Echoes is the brainchild of a group of six friends - Sahib Sarna, Shivansh Kanwar, Gaurav Kanwar, Sahil Gulati, Prateek Babbar and Kshitij Behl, all driven by the same passion.

“We all wanted to pursue our dreams and set up something that reflected our vision. We wanted to motivate people to follow the path they choose and hence came up with Echoes. We worked on building a place with high level of interactivity, motivating interiors, scrumptious food and a social purpose,” says Sahib. With a seating capacity of close to 40, the café currently employs six to seven differently abled persons who manage the guests by taking their orders and making them comfortable. “We will soon be expanding and increasing the number many folds. The staff is indeed wonderful to work with. With procedures designed to suit them, they are fully capable of managing the guests on their own. We will soon be training them in other areas as well,” says Sahib.

Initially, Sarna and his friends had visited the Noida Deaf Society, a school for the hearing impaired, who helped them get the right people to recruit as their staff.

"We then trained them on our procedures and now we get people through our existing staff contacts and open online sources. There are no special tie-ups with any group,” he shares. He adds that they the staff just need to be trained in certain soft skills. “We believe that domain-specific skills can be imparted on the job. When they are hired we train them using our standard set procedures for a few days and few days of on the job training,” he says.

The café serves a mix of Continental, Italian, Mexican, Chinese, and American cuisine. It's a hit among students in the area, which has many Delhi University colleges.

“Students are the building block. We wanted to start with this market so that our message reaches the right ears. However, we don't serve any specific community or age group. The place is open to all and we managed a place where all age groups can have a good time together. From families to corporate staff to students, you can see all enjoying at Echoes,” says Sahib. However, every success story has its share of stumbling blocks. And Sahib agrees that they too faced challenges while setting up the place. Among the major ones, he points out, was the communication gap and designing the system that allows customers and staff to be able to interact efficiently.
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But they managed to surpass it, and have received an overwhelming response over the years.

Talking about their pleasant memories, he says, “There have been many interesting experiences like customers learning sign language from our staff. It is a pleasure to see differently abled people visiting the cafe to have a good time. Daily challenges are there but we make sure we are getting permanent solutions for such challenges.” Twenty-three-year-old Ajay, who has been working at Echoes for a year now, is more confident than he ever was. “I love to serve the guests and interact with them. And what gives me utmost happiness is when our customers try and talk to us in our language, using signs,” he says. After making their presence felt in the capital city, Echoes is aiming to be up and running in Bengaluru’s Koramangala area in first week of March, which will have a seating capacity of 70. You can get more information about the cafe from their Facebook page here.

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TBI Blogs: Parents of Hearing-Impaired Children Need Support, and Many Are Stepping Up to Help

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Is parenting any different when the child has a difficulty like hearing impairment? Drawing upon years of work in this field, Sreela Bose shares insights into her nuanced understanding of the relationship that parents and their deaf children can develop. A little eight-year-old girl tells her mother, “Mamma, do you know that God made mothers because He can’t be everywhere?” This remark reflects her confidence in her mother, and her dependence on her. A father’s role is no less important. He has very important messages for his little one. Messages of love, security, a sense of belonging, and fun—messages that help his child to grow into a self-reliant, confident adult. Together, parents – mother and father – make up the team that is responsible for giving their little hearing-impaired infant the very first gift—that of life. With it comes the adventure of equipping the child with the necessary skills and abilities to live and enjoy life. An adventure filled with challenges, successes, trials, happiness, pain…and the hope of fulfillment. An adventure that all parents go through, because that is what parenting is about. We are reminded of the famous Chinese saying, “When we give life, we become responsible for that life for the rest of our lives.” Is parenting any different when the child has a difficulty like hearing impairment? It is difficult to find a satisfactory answer to this question.

According to a report on a Needs Assessment Study undertaken by the National Deaf Children’s Society (NDCS) in the UK, “parents of deaf children strive for their children to be as fulfilled as hearing children.”

For some this will mean treating their children the same; for others, it will mean treating their child in a different way. However, it is in the actual working out of how it should be the same and how it needs to be different that parents need to make the “difficult day-to-day decisions.” These decisions are an outcome of their own parenting experiences with their child, and need not be the same as anyone else’s. The NDCS study further indicates that “there is an authority with which parents can speak about their child which nobody else can, and this is a source of inspiration and hope” and of strength. Each child is has individual strengths and needs, and individual coping and adjustment skills. It is hardly likely that every child will respond to the same intervention strategies. This is seen often as a “failure” in the child. It also adds to the parents’ “pre-existing sense of inadequacy”, especially the mother, who is the person who spends the most time with the child. She feels she is not doing what is expected of her as a mother. Fortunately, a section of parents in India have begun to realise this, and are now making discernible efforts to identify their child’s needs and the best ways of meeting those needs.

Accepting uncertainty and the disappointment of unrealised potential in the child is about parenting a hearing-impaired child in a system that is not always responsive to his/her needs and abilities.

It is important for parents to have access to good, comprehensive information to enable them to make decisions which parents of hearing children are unlikely to have to do. For example, they need information about the choice of communication method, the management of hearing aids, and understanding and familiarising themselves with another culture—the deaf culture. The flip side is that sometimes professionals, in their enthusiasm, stress so heavily on parents becoming different kinds of teachers and therapists that the additional skills and knowledge required to respond to the child’s special needs could become in themselves the essence of parenting. The other equally valuable aspects of being Ma and Papa – like the joy that a parent can get just by being with a child – lose their significance. Apart from seeking professional support, parents have been known to form their own “help” groups where they find strength and emotional support, because a parent can speak to another parent in a way that nobody else can. Three important need areas that such help groups could address are:
  • Younger parents can meet parents of older children to learn about what they might encounter next, and relieve their anxieties about the future.
  • Parents of older children could pass on strategies, philosophies, and approaches to new parents i.e. the development of ‘lay’ knowledge which only parents, through their experiences, can possess.
  • Parents, when they meet other parents, provide a way of mentoring and support for each other over time. The recognition of parents as a resource for each other is not something that diminishes with the age of the child.
Parents may perhaps need to feel reassured that being the parents of a hearing-impaired child involves the same skills as those required when parenting hearing children. It is possible for them to acquire the additional new skills within this parenting role.

Parents who have been already been through similar experiences can best provide this reassurance.

[caption id="attachment_88406" align="aligncenter" width="1920"] Source: Pexels[/caption] Finally, I’d like to relay a message from a parent. A famous otolgist once told Mrs. Spencer Tracy that her son, John, had a profound sensorineural loss that he could do nothing about. “But,” he continued in the same breath, “John can learn to do almost anything that a hearing person can do. But you have a JOB!” Two years later, a well-known neurologist confirmed the diagnosis and commented, “Mrs. Tracy, you are blessed among women. Yours can be a very interesting life.” “These are moments I shall never forget,” is Mrs. Tracy’s message to us. “It [having a child with a hearing impairment] is not a blessing one would pray for, but certainly, mine has been an interesting life.” Mrs. Spencer Tracy overcame her own tragedy and went on to found the prestigious John Tracy Clinic in the USA. Centres of excellence have also been set up by several Indian parents. They have transcended their own pain and brought hope and opportunity to hearing impaired children other than their own.

These centres have been a tower of courage, comfort, and encouragement for other parents as well.

[caption id="attachment_88407" align="aligncenter" width="500"] Source: Pixabay[/caption] We cannot ignore, or underestimate, the strength of parents. For it is on this strength that their children build their lives. (The author has over 45 years of experience as a trainer of the Teachers of the Deaf. She has also worked with the Uganda National Association of the Deaf.) Vaani is running an awareness campaign on childhood deafness, demanding mandatory early identification and intervention. For more information, please visit the #SilentPact website.

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Meet the Man behind Sign TV, a Website That Offers News, Tutorials & More to the Hearing Impaired

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Kingsley David, founder of the online news portal for the hearing impaired, Sign TV, is striving to bridge the gap between the hearing impaired and the able-bodied through his initiatives. Ever experienced that terrifying temporary hearing loss while the plane takes off? The world around you turns into just images, the sounds muted. For some, that’s their whole life.
“There are over 5.5 crore hearing-impaired people in India. And hardly 5% of them are employed. There’s rampant unawareness about the hearing impaired. The able-bodied don’t know the sign language and thus for the hearing impaired, there’s no way to communicate with them and gel with society. The lack of resources leaves them uninformed and unaware. They feel isolated,” says Kingsley David.

Working towards his aim of aiding the integration of the hearing impaired with society, Kingsley has started the online news portal for the hearing impaired: Sign TV.

[caption id="attachment_88279" align="aligncenter" width="1000"] Kingsley David (left) with his colleague Sanu Chukkri[/caption] Sign TV is aimed at educating the hearing impaired in the Indian sign language and keeping them informed on the latest developments in news, healthcare, education and more. The channel also features health segments with information about different diseases and their prevention. An employee at an IT park, “Techno Park,” in Kerala, he has also started the initiative “Talking Hands: Creating Conversation,” wherein he conducts sign language classes for the able-bodied employees. Techno Park has over 45 hearing-impaired employees, and thanks to the efforts of Kingsley and his hearing-impaired colleague Sanu Chukkri, over 100 able-bodied employees have completed the first level course in sign language. Kingsley, who was raised by his hearing-impaired aunt, had seen the issues she faced on a day-to-day basis very closely. Later, when he graduated and started working, Sanu joined his company. The two became friends and Kingsley realised that there was so much that could be done for the hearing-impaired community.
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“After befriending Sanu, I got a chance to reconnect with the old memories of my aunt. I saw that the problems that she had faced back then, Sanu was facing even today. There were six hearing-impaired employees in our company back then and they had absolutely no contact with others. I could sense that the gap was very wide,” says Kingsley.

Talking Hands received an incredible response from Kingsley’s fellow employees. His initiative also received an award for creating a great place to work.

[caption id="attachment_88295" align="aligncenter" width="1000"] Team Talking Hands[/caption] As much as it was necessary to make the able-bodied aware of the challenges faced by the hearing impaired, it was also important to create awareness and opportunities among, and for, the hearing impaired.
“Information is not an option; it’s a right, right? Unfortunately, despite the high number of people who are hearing impaired, our country is still lagging in its efforts for the provision of facilities to them.This communication issue exists widely in media outreach. Few resources are available for reaching the hearing impaired. I interacted with many activists and individuals and decided to set up Sign TV, the first online news portal for them,” says Kingsley.
Kingsley produces regular news bulletins in sign language along with instructional videos. The tutorials, health videos, as well as the news bulletins, are also archived on the online blog. He received the initial funding for Sign TV from a close friend who has settled in Spain. Currently, he rents a studio for the production of the news bulletin and has two news readers. It gets difficult at times to manage to run the enterprise since he has no source of funding anymore.
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However, nothing can dampen Kingsley’s spirit. He has a zillion ideas in his head and is eager to execute them all. His next venture is an art festival that he is organising in Trivandrum, where 25 disabled artists will paint live during a day-long event and voice their aspirations, dreams and issues through their art. Art for All is set to take place on February 25 and Kingsley couldn’t be more excited.
“Art is the best medium to communicate and from where I stand, all I can see is a huge communication gap. I hope art helps bridge this gap and bring all people together,” he says.
Visit the SignTV website here. To know more about the Art for All festival, visit the Facebook page here.

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TBI Blogs: Did You Know India’s Disabled Will Get Access to ₹855 Crore Under Union Budget 2017?

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The last Census pegged the number of disabled individuals in India as over 21 million. With such a sizeable chunk of the population in need of assistance, schemes like the ‘Accessible India’ campaign need effective funding to be able to make a difference. For the last one year, it has been projected that the government is pursuing the social welfare agenda for the differently-abled on a mission mode. From the ‘Accessible India Campaign’ – in which the government set an ambitious target of making a large number of government buildings, railway stations, and international airports fully accessible – to the change of nomenclature from ‘viklang’ to ‘divyang’, there were talks galore on the welfare of the differently-abled. This analysis undertakes an in-depth study into the budgetary allocations made for the various schemes run by the Department of Welfare of Persons with Disabilities.

Overview

According to the 2011 Census of India, 2.21 % of Indians suffer from a disability. For the last three years, the government has been consistent in maintaining 0.039 % of the total budgetary allocation to the Department dedicated to the welfare of persons with disability, though year-on-year there has been an increase in the budgetary allocation for this department. But, from a parliamentary question answered in Lok Sabha in November, 2016, we find a great fluctuation in actual expenditure as a percentage of budgetary allocation for this Department, which shows that a higher allocation isn’t necessarily translating into increased welfare. Budgetary AllocationActual ExpenditureActual expenditure as a % of budgetary allocation
2014-15 565 337.96 59.81%
2015-16 565.40 484.34 85.66%
2016-17 700 345.41 (Upto 24.11.2016) 49.34%

Education Support for the differently-abled

The Department provides scholarships and fellowships to differently-abled students at various levels – pre-matric, post-matric, fellowships for M.Phil and PhDs, as well as scholarships for pursuing higher education overseas. In its Outcome Budget for 2017-18, which essentially shows the intended targets to be achieved under various schemes, the government has set very ambitious targets for giving out different kinds of scholarships and fellowships to differently-abled students. The table below puts things in perspective:
Name of the Scholarship Scheme 2015-16 (Number of actual beneficiaries) 2016-17 (Number of actual beneficiaries) 2017-18 (Target beneficiaries)
Pre-Matric Scholarship 2368 380 60,000
Post-Matric Scholarship 3565 1702 20,000
Top class scholarship scheme 14 30 320
National fellowship for PwDs 527 567 400
National Overseas Scholarship 7 2 30
Total 6481 2681 80,750
To paint a clearer picture, the following table shows the amounts allocated and utilized over different years: (In crores)
Name of the Scheme Funds Utilized (2015-16) Funds allocated (2016-17) Funds Utilized (2016-17) (upto 24.11.2016) Funds allocated (2017-18)
Pre- Matric Scholarships for Students with Disabilities 1.60 4.00 0.272 7.00
Post-Matric Scholarships for Students with Disabilities 3.21 8.00 2.042 10.00
Scholarship for Top class Education for Students with Disabilities 0.23 1.00 0.568 5.40
National fellowship for Students with Disabilities 19.96 19.50 14.085 24.00
National Overseas Scholarship for Students with Disabilities 0.00 1.00 0.365 2.00
Total 25 33.5 17.3 48.4
What emerges from this data is that in 2015-16, with a total utilization of ₹25 crore, the government was able to provide support to 6,481 students. In 2016-17, with an allocation of ₹33.5 crores, and utilization of about half of it till November, 2016, the government managed to provide support to only 2,681 students.

Now, in 2017-18, with just ₹48.4 crore allocated, the government aims to provide support to 80,750 students.

In effect, with just a 44 % increase in funds allocated to different scholarships and fellowships, the government hopes to increase the number of beneficiaries by almost 2,900 %. This, while keeping in mind the backlog of payments as admitted by the government in an answer given in Lok Sabha, as per which the actual expenditure on scholarships in 2016-17, as shown in the table above, is actually scholarships given for the year 2015-16, the increase in allocation made by the government is grossly inadequate to meet the ridiculously high targets. The government needs to seriously review and reinvigorate its efforts towards education support for differently-abled students because, as this image explains, considerable work needs to be done for education to be made fully accessible.

As per this image, even the ambitious target set by the government is just a drop in the ocean, and the funds allocated for that purpose will not do justice to the cause.

Scheme for Implementation of Persons with Disability Act (SIPDA)

The government has been making allocations every year to run various programmes for implementation of provisions of the Persons with Disability Act. Under SIPDA, grants-in-aid are given to State Governments and various other bodies set up by the Central and State Governments, which includes Autonomous Bodies and Universities, with an aim to:
  • Provide barrier-free environment in important government buildings (for example, ramps, rails, lifts, toilets, Braille signage and auditory signals, tactile flooring, etc.)
  • Make Government websites at the State and District levels accessible to PwDs.
  • Set up early Diagnostic and Intervention Centres at district headquarters.
  • Offer Skill Development Programmes for Persons with Disabilities.
  • Offer one-time grants to State Governments for providing infrastructural facilities to Offices of State Commissioners for Persons with Disabilities.
SIPDA during the last three years:
2014-15 (₹ in crores) 2015-16 (₹ in crores) 2016-17 (₹ in crores) 2017-18 (₹ in crores)
Funds Allocated 71.00 118.00 193.00 207.00
As per a Parliamentary Question answered in the Lok Sabha, in 2016-17, only ₹10.55 crore were released, which was a minuscule 5.4 % of the budgetary allocation, and even out of that, up till November, 2016, no amount was utilized. It is further interesting to note that out of 107 proposals received in 2016 from all the states for undertaking various projects under SIPDA, the government has only sanctioned 51 projects. This explains the under-utilization of funds. Moreover, many states like Bihar, Goa, and Haryana seem to have received no funds under this scheme for the last three years, despite submitting proposals. Many other states have seen fluctuations in funds released, like the State of Madhya Pradesh (incidentally also the state which submitted the maximum number of proposals in 2016), which received ₹760 lakh in 2014-15 and only ₹18 lakh in 2015-16.

In 2016, the government also launched the ‘Accessible India’ Campaign, which found no mention in the 2017 budget speech.

[caption id="attachment_89177" align="aligncenter" width="3088"] Source: By Dr Satendra (Own work) [CC BY-SA 3.0], via Wikimedia Commons[/caption]No separate allocation was made for this as it was covered under SIPDA. But with an alarmingly low utilization rate in 2016 (till November 2016), it seems unlikely that the government will be able to meet its targets. Further, it has been pointed out that the Rights of Persons with Disabilities Act, 2016 gets no separate allocation in the 2017 budget for implementing its various provisions, and it is not clear whether those expenses will be automatically covered under SIPDA. One of the more prominent programmes under SIPDA are the Skill development initiatives. As per its Outcome Budget, the government intends to skill 2.5 lakh individuals this year. But from the table presented below, we see that the number of beneficiaries covered in the last three years, and the funds utilized for the same, need to be increased manifold if this target it to be achieved by the designated timeline. Further, from a question answered in Parliament, 77 proposals under the Skill Development Scheme were received in 2016-17 from various states, out of which only eight proposals were sanctioned.
Year Amount Released Number of Beneficiaries for which funds released
2013-14 ₹36.38 lakh 570
2014-15 ₹1022.94 lakh 9,000
2015-16 ₹2203.72 lakh 28,042
2016-17 (upto 24.11.2016) ₹75.11 lakh Not available
2017-18 Not available 2,50,000 (intended target)

Medical assistance schemes

The government also allocates an annual (substantial) amount to provide for medical assistance of differently-abled people through various schemes. The details are given below: (in crores)
Budgetary Allocation 2014-15 Budgetary Allocation 2015-16 Budgetary Allocation 2016-17 Budgetary Allocation 2017-18
Support to National Institutes (Blind, Deaf, Mentally Retarded, Orthopaedically Handicapped) 147.16 153.84 175.74 190.02
National Trust for Welfare (Persons with Autism, Cerebral Palsy, Mental Retardation and Multiple Disabilities) ---- ---- 5.00 15.22
Aids and Appliances for the Handicapped (ADIP) 98.00 112.95 130.00 150.00
Research on Disability related Technology Products and Issues ---- ---- 0.40 1.00
Deendayal Disabled Rehabilitation Scheme (DDRS) 80.00 54.00 45.00 60.00
Setting up of State Spinal Injury Centres ---- ---- 4.00 5.00
Indian Spinal Injury Centre ---- ---- 2.00 2.00
The DDRS scheme aims to strengthen district-level grassroot infrastructure to provide comprehensive services to differently abled-people. The scheme uses awareness generation, rehabilitation, and training of rehabilitation professionals. Out of 2016-17’s allocated ₹45 crore, until November 2016, governments utilized more than half (₹25 crore) across different states. Surprisingly, out of 377 proposals received in 2016-17, until November 2016, the government hadn’t sanctioned even one proposal. It seems that the 190 proposals sanctioned in 2015-16 utilized the ₹25 crore. Further, in 2014-15 and 2015-16, the government has been consistent in spending about ₹50 crore. But the number of organizations receiving this grant came down from 640 in 2014-15 to 589 in 2015-16.

It seems that the 2017 budget is more likely to be for maintaining existing infrastructure rather than creating new ones.

[caption id="attachment_89179" align="aligncenter" width="1920"] Source: Pixabay[/caption] Under the ADIP Scheme, implementing agencies receive grants to assist needy differently-abled people. These help them procure aids and appliances which can reduce their disability and increase their economic potential. Just like DDRS, the majority of the funds allocated for this scheme run existing programmes. There is very little addition in terms of new programmes. In fact, as on November, 2016, the government had already utilized ₹97 crore of the ₹130 crore allocated in 2016. However, it managed to sanction only one new proposal out of 84 received during the year from different states.

Also, despite a consistent annual increase in funds for this scheme, the number of beneficiaries affected has consistently reduced.

Tax Deduction under Section 80DD

If a taxpayer has dependent parents, spouse, children, or siblings who are differently-abled, he/she can claim deductions. These can be up to ₹75,000 for expenses on their maintenance and medical treatment under this section. This deduction can increase to ₹1.25 lakh in case of severe disability. This is a positive step towards assimilation of differently-abled people by encouraging people to invest in their well-being.

Conclusion

Overall, the increase in budgetary allocation doesn’t seem to translate into equivalent increase in action and infrastructure on the ground. The government needs to increase its budgetary allocation, along with maintaining decent utilization, in order to make a dent. If you have any inputs on the above analysis that you’d like to get to MPs, fill an online form here.
Featured Image is for representational purpose only. (Source: By Department of Foreign Affairs and Trade (Disability Rights Fund) [CC BY 2.0], via Wikimedia Commons)

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TBI Blogs: How an Annual Event for Parasports Is Uniting West Bengal in Celebrating Its Disabled Athletes

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India’s great performance at the Rio Paralympics in 2016 is a reflection of the improving scenario for para-sports in the country. Shampa Sengupta writes about a West Bengal event that celebrates the spirit of sports for the disabled. Rajia Khatoon, who came all the way from the small village of Uttar Dinajpur in the Northern side of West Bengal to the iconic Mohun Bagan Club Grounds of Kolkata on 15th February to take part in State-level Sports for Persons with Disabilities, had never heard the name of Deepa Malik. When I told her that Deepa Malik is the first woman to bring medals for India in a Paralympics game, her eyes glistened. She asked me, “Didi, a woman like me went out of India and played? There she won medals?” It was Rajia’s first-ever visit to the city of Kolkata and she was excited to see so many disabled people coming together. The organiser of this sports event, Paschimbanga Rajya Pratibandhi Sammelani (PRPS), is the West Bengal affiliate of the National Platform for Rights of Disabled (NPRD). PRPS had been organising this sports event for the last 28 years in West Bengal. They also organise similar events at the district level every year, and utilize such events to bring more and more people under a common umbrella. 2017’s annual sports event by PRPS had around 3,000 participants. This was open for children as well as adults with different kinds of disabilities. With more than 50 events enlisted, it was a tough ordeal for volunteers and organisers. But the participants’ enthusiasm was contagious. There were participants from every single district of West Bengal. Logistics needed a lot of attention, from transport arrangements to organising lunch for all.

The inauguration of the event comprised of dances from different tribal areas of Bengal, and as the Chhou dance or the Santhali dance progressed, one could only admire the variety and heterogeneity a single state of India could offer.

Diversity was indeed the key ingredient of the day’s event. There were many dignitaries who were present on the stage during inauguration. Along with senior sports personnel like athlete Jyotirmoyee Shikdar and footballer Shivaji Banerjee, we saw Retired Justice Ashoke Kumar Ganguly of the Supreme Court, as well as many prominent persons who came to cheer the players. But what made the stage interesting was the presence of senior leaders of different political parties who usually fight with each other on every single issue. The significance of this coming together was indeed attention-grabbing. West Bengal rarely gets to see leaders from CPI(M), Trinamool Congress, and the BJP all together at the same place, and one does hope that such camaraderie will bring in much-needed changes to the lives of disabled people of West Bengal.

From the implementation of the newly enacted Rights of Persons with Disabilities Act to any existing policies for the disabled, the need of political will to improve lives of disabled is important.

There was also an unexpected guest who dropped in to see what is happening at the Grounds. The present physical trainer of Mohun Bagan team, Miranda Garcia of Brazil, was in the club tent, and came out to investigate the grounds, unaware that the Grounds were given for the Sports event for the Disabled on that day. Garcia became emotional at what he saw, and cried openly in front of the media while observing that the condition of disabled people remains the same in every country. He said that people with disabilities are treated in the same manner in his country as well. The spirit of the disabled athletes made him happy. He said he would take this particular memory back to Brazil and talk about it when he goes back there. In fact, the Rights of Persons with Disabilities Act of 2016 has a specific section on Sports. This is an important inclusion, as it was not present in our previous law. The banners on the grounds demanded a National Para-Sports Policy for the country. That is something even the wins at the Rio Paralympics have not brought in yet. A cut in budgetary allocations in the Central Government’s Budget for 2017 for para-sports is also alarming.

NPRD India took a Resolution on this issue in its recently concluded Executive Committee meeting.

Rajia faces several forms of marginalization as a rural woman with disability from a minority community. We rejoice that she could come out of her village to participate in a sports event in a big city. Whether she won a medal that day is immaterial. (The author is an Executive Committee Member of NPRD India.) Help NPRD India fight for advocacy, policy intervention, and disabled rights by getting in touch on Facebook.

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From Touch-Sensitive Controls to Obstruction Warnings, India’s Very Own ‘Smart’ Wheelchair Is Here!

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As of 2011, statistics show that there are 2.68 crore disabled people in India. And of that, a whopping 20.3% of them are movement disabled. And it's a number that seems to be on the uptick, making it even more imperative to prioritise accessibility in the country. Hoping to make mobility easier, researchers at the Central Mechanical Engineering Research Institute in Durgapur, West Bengal, have developed what they note is the country's first "smart" wheelchair. It was formally launched during the Diamond Jubilee Inaugural Programme on February 26. Priced at ₹35,000, the wheelchairs are fully electronic and sport a control that is touch-sensitive. Being a "smart" device, it can detect obstacles at least a metre away and avoid them and can easily scale slopes that are at a tilt of 8 to 9 degrees.

The wheelchair for now has a foldable footrest but the team notes that efforts are underway to make the whole unit foldable in the near future.

Image for representation. Photo source

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According to the director of CSIR-CMERI, Harish Hirani, the wheelchair has differential steering making movement even easier for the user. Speaking to the Times of India, he elaborates on the many features that the device boasts. He says, "It has six wheels to enhance mobility, stability and capability to turn 360 degrees in any narrow corridor. It offers high manoeuvrability to navigate smoothly on inclines." While there are similar models of wheelchairs available abroad, their price points are significantly higher as they have to be imported to India. The team believes that this will make it easier for various sections of the society who might otherwise be unable to afford something comparable. Click here to contact the team

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This Diamond Trader Did Not Let Disability Get in the Way of Success

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Who says you can’t dance without legs? Or play sports? Or lead a full, successful and happy life? Kalpesh has proved that you don’t need a perfect body to achieve your dreams. Kalpesh Chaudhary was just five months old when he developed a severe fever and polio took away his ability to use both his legs. This could have easily devastated anyone. But not this Surat boy! Kalpesh says his disability only made him stronger. He did not let it stop him from achieving what he was determined to do. Though he could not study after Class 11 due to his family’s financial condition, he used his natural inclination towards business to run a successful diamond trading company that today has an annual turnover of about Rs.10 crores. [caption id="attachment_42624" align="aligncenter" width="1024"]Kalpesh is a diamond trader and his disability never came in his way of achieving his dreams. Kalpesh is a diamond trader and his disability never came in the way of achieving his dreams.[/caption]
“My family always supported me. They never said I could not do something. I travel alone everywhere for business and have also single handedly taken care of my entire family after my father’s death,” says Kalpesh.
Kalpesh’s father, who had started the small diamond trading business, died when Kalpesh was just 18.

Still a young boy, Kalpesh didn’t know what to do with his life. He then took control of his deceased father’s business, which wasn’t doing too well, and transformed it into a company that is making many crores 14 years later.

[caption id="attachment_42622" align="aligncenter" width="1024"]Kalpesh's family has been his biggest support. Kalpesh's family has been his biggest support.[/caption] The company has just two employees since diamond trading doesn’t require much staff, says Kalpesh.
“We are not into diamond manufacturing and polishing, which requires many more people. Diamond trading requires just one person who delivers the diamonds to the buyers. I study the market, do my research and then finalise when and to whom the diamonds should be sold, and from where they should be purchased,” adds Kalpesh.
He now manages his entire business over the phone and has carved an impressive place in the market for himself, with many big jewellery companies as his clients across the country. Now successful and happily married, Kalpesh had to struggle a lot on the personal front too after his father’s death. He had to support his siblings – get his sisters married and help his brother find a career and settle down.

Love blossomed in his life when he met his life partner Deepali through an NGO. Deepali is a graduate and also suffers from polio.

[caption id="attachment_42623" align="aligncenter" width="1024"]Kalpesh's wife, Deepali added more confidence and love in his life. Kalpesh and his wife Deepali.[/caption] They have two sons who are currently in school.
“I think marriage and a normal life are not given much importance in the lives of people with disabilities. They somehow take a backseat. This should not be the case. Everyone should get a chance to lead a regular life in spite of his or her disability,” says Kalpesh.
Highly motivated to help others like himself, Kalpesh started a WhatsApp group for people with disabilities and plans to start a Facebook page and website as well.

Kalpesh is also interested in sports. In fact, he was one of the finalists at the Mr. Wheelchair event in Mumbai in August 2015.

[caption id="attachment_42625" align="aligncenter" width="1024"]The competition was organized in Mumbai and Kalpesh received many good comments. The competition was organized in Mumbai and Kalpesh received much appreciation for his efforts.[/caption] He is also a regular performer at garba events in Gujarat. Asked what keeps him so motivated and positive, he says: “All one needs is dedication and strong willpower because people will bring you down. They will demotivate you. They will sympathize with you but talk behind your back. But you have to stay strong and keep moving.”

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TBI Blogs: This Inspiring Mother Learned Speech Therapy to Help Raise Her Son With Down Syndrome

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Raising a child with Down Syndrome can be difficult even under the best circumstances. Asha Kothawan had to overcome financial problems, and lack of support to raise her Down Syndrome-afflicted son, but she refused to give in, becoming an inspiration for mothers everywhere. Down Syndrome affects close to 30,000 children every year in India alone. It causes growth delays, characteristic facial features, and mild to moderate intellectual disability. For example, a fully grown person with Down Syndrome has the average IQ of a 10-year-old child. There is no cure for Down Syndrome, and it is a genetic disorder. The parents of children with Down Syndrome usually do not have it. This story is about a mother’s battle against harsh circumstances and society while bringing up her child who was diagnosed with Down Syndrome. Constant care, support, and education are required in such situations. It takes a lot of dedication and care to bring up a child with Down Syndrome. “Devdutta was very loved, and everyone was happy when he was born,” says Asha Kothawan. “I had two daughters before him, and he was the first baby boy.” But Asha started to notice something strange about Devdutta through his early years. “He didn’t respond to things that most other babies did. His behaviour wasn’t normal,” says Asha. Worried sick, she started consulting with doctors to find out what ailed her son, until a doctor diagnosed him with Down Syndrome. “My doctor told me to mentally prepare myself. He warned me ,‘Your son will have the mental capacity of a child. He will be physically able, but won’t be able to go about his daily activities on his own.’” To make matters worse, her family was completely non-supportive, “My husband started to have anxiety and panic attacks because of the plight of our Devdutta. Furthermore, I had my third girl child after this.” As a result of his poor conditions, Asha’s husband had to quit his job. With the sole breadwinner for the family now unemployed, Asha’s family was struck by financial instability too. However, she refused to lose hope, “I kept faith in God. Soon, my eldest daughter started working, and that provided me with a lot of relief.”

With the odds stacked up against her, Asha powered on.

She started speaking with parents of other children with Down Syndrome. Soon, she put Devdutta in a school for children with special needs. She worked double-time, being there for her family, dropping and picking up Devdutta from school, and giving him special attention after school as well. She even learned speech therapy, “He had problems with speech and pronunciation. I knew he needed extra help, so I learned speech therapy myself and trained him at home.” Slowly, Asha’s hard work and dedication started to pay off. Devdutta could soon go to school on a bus on his own, and to a large extent even take care of most of his daily needs. As part of a CSR initiative by an MNC, Devdutta now goes to work in Pune, and is paid a decent salary. Asha smiles, “I was so happy when I knew that he was making a living for himself. It’s not enough for him to live alone and take care of himself, but it’s something!” Asha is now 70, and all her daughters are married and lead happy lives. As for Devdutta, Asha says, “He’s 43 years old now, and I live with him. He makes me proud every day.” YourDOST celebrates the indomitable spirit of the #WomenOf2017. Read more amazing stories of courageous women here. If you or someone you know has a story, share it with us!

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This Coimbatore NGO Is Making Toilets More Accessible to the Disabled at the City’s Railway Station

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Even though crores of commuters travel through trains in India on a daily basis, railway stations for the most part woefully remain inaccessible to those who have movement disabilities. However, one NGO in Coimbatore has decided to ensure the toilets in the city's railway junction become more user friendly to those with disabilities. Swarga Foundation, which has gotten the permission of Southern Railway, will be conducting extensive restorations of bathrooms at the Coimbatore railway junction. They have already conducted inspections along with railway officials and identified areas that urgently need to be fixed.

For instance, a person in a wheelchair would be unable to navigate properly even if one tile in a rest room is protruding or broken.

Image for representation. Photo source: Pixabay  Speaking to Times of India, Swarga Foundation founder G Swarnalatha said, "The project will include replacing the bathroom tiles with tiles that will not be slippery, replacing the metal handle bars with a material like stainless steel that will not rust and creating grab bars on both sides of the toilets." Swarnalatha elaborated that in order to ensure that the toilet floors don't get wet, the organisation will raise Indian closets by six inches. The team will also be creating both Indian and Western closets for all bathrooms. The goal is to make the restrooms accessible for the movement of all disabled people, including those with visual impairments.
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The NGO will be spending ₹2.5 lakh in order to successfully complete the renovation of restrooms in at least three platforms in the station. If there is any surplus of funds, the foundation will also ensure non-stop water supply, fix faucets, basins and more. Recently, disability rights activist Nirali Modi started a petition that went viral, requesting Prime Minister Narendra Modi to make the railways more accessible for the disabled. Swarga Foundation can be contacted here

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This Political Science Professor Has Led the Indian Blind Cricket Team to Three World Cup Wins!

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In a nation where cricket is a religion, there is a team that plays the gentleman’s game and yet feels the nation has turned a blind eye towards it.

Last month, the Indian Blind Cricket team defeated Pakistan by nine wickets to lift the T20 World Cup for Blind title for the second time in a row. And it was a political science professor who led this talented team to the top spot.

Neither a career coach nor a career sportsman, Patrick Rajkumar has been coaching India’s Blind Cricket team since 2012. Under him, the team has won the T20 World Cup, the Asia Cup and the ODI World Cup!

Photo Source Born and brought up in a small village in Kolar Gold Field region of Karnataka, Patrick came to Bengaluru to pursue his graduation at St Joseph's College, an alma mater he shares with Rahul Dravid. A sports lover, he used to play a lot during his college days. His favourite sports were table tennis and football, with cricket being a distant third. However, after he graduated and started working as a political science professor, he gradually lost touch with sports. Other than being a professor, Patrick was also a life skills coach and trained counsellor who worked with youth groups. So, when he was offered the job of coaching the blind cricket team by Cricket Association of the Blind in India (CABI), he was just as apprehensive as he was eager. Patrick knew that CABI had approached him more for his man management skills than his cricketing ones. Ever since the Indian team’s dismal show at the 40-over ODI World Cup in 2006 (won by Pakistan), blind cricket in India had been in the doldrums. Changing this status quo would require a special effort and Patrick knew it.
“The first thing I did was a detailed research into the sport. I read articles, saw videos, basically understood what was required of me. This was when I realised that the job would be tough and full of challenges, but not impossible. And if I succeeded, I would be helping the players fulfill a long-cherished dream. So, I accepted,” says Patrick.
Patrick Rajkumar Photo Source Patrick’s first and most important challenge was getting the players to trust him and believe that he was fit for the job. Having never played blind cricket, most of the team members initially felt that Patrick would not be able to fit in their world or understand their problems. Undeterred by their wariness and scepticism, Patrick began working slowly but consistently to transform them from players to champions. The T20 World Cup was two months away and his first step was to implement a regimental training system for the players. The players’ day would begin with them hitting the training ground at 5.30 am everyday. This was followed by six to seven hours of focussed training in an undisturbed environment. He also designed a carefully-researched diet chart and exercise schedule for them. The players initially found Patrick’s schedule tough but they adapted to it soon. Patrick’s next step was dividing the training sessions so as to focus on both physical and mental preparedness of the players. While players focussed on physical fitness and cricket skills in the mornings, the evenings were devoted to personality and confidence-building activities. During these sessions, the players learned how to stay calm under pressure, how to handle crowds, how to talk to media etc. Patrick’s ability to speak eight languages helped him communicate easily and build a rapport with the players who came from different parts of the country. However, he knew that if his training strategy failed, it might permanently place him in the bad cop bracket.

The turning point came when under Patrick’s stewardship, the team went on to win the World T20 Championship in 2012. By this time, he had earned not only the team’s trust, but also their respect and affection.

Photo Source For the next few years, Patrick honed the team’s ability to perform in any situation. He also ingrained in them the habit of always putting the team’s interests before individual honours. The team increased their participation in tournaments despite the difficulties caused by lack of funds.
“It has been really tough. We don’t have a turf ground of our own to practice, let alone an infrastructure that provides proper diet or training equipment. The school ground we use for practice is a rough field with scattered patches of grass. Any attempt to practice a difficult fielding drill could result in serious injury to players. The players travel in unreserved (train) compartments and can rarely afford the daily diet they need for their strenuous schedule. It is only the players’ sheer conviction and love for the game that has kept them going,” Patrick explains.

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Patrick’s efforts and the hard work of the players paid off when the team’s World T20 victory was followed by them winning an ODI series against Pakistan and Australia in 2013, the ODI World Cup in South Africa in 2014 and the Asia Cup trophy in 2016. However, the crowning glory of the team’s outstanding performances was when they won their second World T20 title at Bengaluru's M Chinnaswamy Stadium, after defeating India's perennial arch rival, Pakistan, by nine wickets.
“This win is very special. For one, there was immense pressure on us, being the reigning T20, ODI and Asia Cup Champions. Secondly, we were playing at home and the public expectation were significantly higher as compared to the last time. Also, in blind cricket, sound plays a very important role. So playing in front of large crowds cheering loudly was tougher than usual for the team, but they performed very well,” Patrick says, his pride in his players reflecting in his voice.
Photo Source At the same time, Patrick is quick to add that while winning tournaments is important, what matters more is the much-needed attention it brings to the sport.
“The wins in the last few years have encouraged many visually-impaired individuals to take up blind cricket. The rewards and the jobs that have followed have helped the players who come from financially-weak families. Also, except us, all the teams at the World Cup are affiliated to their mainstream cricket Boards – be it Cricket Australia (CA), England Cricket Board (ECB) or New Zealand Cricket (NZC) - who take care of their training and tournament expenses. I sincerely hope that BCCI will take steps to support blind cricketers in India, now that we have proved our potential,” concludes the hardworking and humble coach, for whom the best part of his job is seeing the lives of his players change for the better.

Also ReadFrom Leading India’s Blind Cricket Team to Getting the Padma Shri, Shekhar Naik’s Inspiring Journey

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TBI Blogs: 5 Ways to Make Children With Autism More Comfortable in Mainstream Classrooms

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Children with autism don’t misbehave in a classroom deliberately. Their behavior is a call for help—your help. We met at a party. She was young and vivacious. We hit it off immediately, as both of us were from the education field. She was a Class IV teacher. As soon as she heard that I work with people with autism, a barrage of questions and comments followed. You see, she was teaching a child with autism in one of her classes. “It’s impossible to handle him.” “He’s totally disruptive, and creates a ruckus in my class.” “What an attention-seeker! Do you think he should be attending regular school?” “He does this deliberately. What a spoiled brat! He’s so terribly behaved.” “He can’t sit still, even for a moment.” “I don’t think he’s capable of learning.” “His mother is so demanding, and she overestimates the child’s abilities.” I didn’t have to say much to keep this conversation going. The occasional head nods, and several “hmmms”, sufficed. It felt different, hearing the educator’s point of view—the viewpoint of someone teaching children with autism. I’m more accustomed to hearing stories from parents about how unfairly teachers treat their children at a mainstream school. It felt like the proverbial elephant. One person described the trunk, whereas the other described the torso. It didn’t feel like they were describing the same magnificent animal.

Today, I’d like to address challenges faced by teachers who teach at inclusive schools. They don’t have children only with autism, but with many other special needs.

[caption id="attachment_91242" align="aligncenter" width="2272"] Source: By No machine-readable author provided. Kevinfruet assumed (based on copyright claims). [CC BY-SA 3.0 or GFDL], via Wikimedia Commons[/caption]First off, it’s commendable that you took up this profession. You had a choice of more lucrative careers, but you chose to take up this noble profession. I’m certain that you intend on making a difference in the lives of children. But here is this one student, who you can’t handle. This child makes you uncomfortable, and creates a storm in your classroom. Secretly, you wish he wasn’t in your class. You probably feel guilty about thinking these thoughts, but you just can’t deal with his odd and disruptive behaviour. I know how you feel. Mohit, my son, is now 27. For 10 years of his life, he attended regular schools. I interacted with, and explained autism to, several wonderful teachers. I’d like you to shift gears for a little while. Let’s move from how you feel to how this child feels. What if you realised that this kid does not disrupt your class deliberately.

He just has a differently wired brain. Not abnormal or dysfunctional, just different.

[caption id="attachment_91244" align="aligncenter" width="2048"] For representational purpose only. (Source: Flickr)[/caption] Due to the way his brain is wired, he is hyperactive, and appears out of control. He seems anxious. He is unable to connect with the other children. In fact, it may appear like he often fights with them. All of this behaviour is his way of crying out for help. YOUR help. Even if this child is vocal, in reality, he is unable to emotionally connect with you and let you know what’s going on. Can you imagine how he feels? No friends, no support, and no one to understand him. Take a minute to digest what you just read. Visualize this child in your classroom. Do you look at him differently? Wouldn’t you like to help him? I’m glad to see you nod. Here are five things you can do immediately to teach children with autism better.

Connect With The Mother

A mother is your your biggest ally. Have a heart-to-heart chat with the child’s mother. Share your difficulties. Let her know that you want to help. Ask for reports and assessments that the child may have undergone. Study these. These will be huge eye-openers in enhancing your understanding of the child’s condition. [caption id="attachment_91245" align="aligncenter" width="1024"] For representational purpose only. (Source: Flickr)[/caption]

List The Child’s Strengths

Every child—I repeat, every child—has strengths. You just have to observe them closely. The child may be extremely loving and caring, or have some skill that your other students don’t. List these out.

Understand How He Learns

This child will not learn like others. Many students with autism learn visually. Hence, what helps them is a visual schedule. Break things up to help them understand and stay calm. There are many other ways in which a child can learn.

Ask for Additional Help

You have at least 20 other children looking for your guidance. Yes, it’s not possible to pay attention to one child, and leave the others in limbo. A shadow teacher, or aide, is extremely useful here. She can sit with the student, and guide the child when he gets inattentive, so that your class can move smoothly.

Have a Behaviour Plan

Individuals on the autism spectrum get overwhelmed quickly because of something called “sensory overload”. It’s important to pick up the early signs, and have a designated area where the student can go with the shadow teacher if he has a meltdown or gets anxious. He can rejoin the class when he’s ready. It makes the child feel assured and safe, and keeps your class functioning smoothly as well. A behavioural consultant can work out a customized plan, which can be followed at school. This can be cumbersome and stretch you. I understand. But can I take you back to why you decided to become a teacher? Here is what a couple of my mainstream teacher friends said:
“I wanted to be a teacher to create value for the next generation of our future…make a positive difference.” “I wanted to impart my knowledge, and learn from them as well. I always want to remain young at heart by surrounding myself with kids. Above all, love for kids…Love their innocence…Beautiful souls.”
You, my dear friend, are a sculptor. You have taken this opportunity to impact a child’s life. Yes, this same child whom you find impossible and disruptive. By teaching children with autism, you will expand your own heart. You will create happiness for his family too. One more thing. Your influence doesn’t just stop with this family. It creates a ripple effect. Imagine all the little ones under your care. Imagine them looking up at you with innocent, studying eyes, to see how you behave with the different. They’re watching you carefully. Remember that they will learn what you do, and not what you say. They will talk to their parents about the amazing ways in which you handled and accommodated “that different child”. I hope you will take this challenge of enhancing your own life, and the lives of the next generation. For more information and guidance on working with children with autism, visit the SAI Connections website.

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These Inclusive Labels Address the Basic Clothing Needs of Disabled People & the Elderly

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“Disability is a matter of perception.”~ Martina Navaratilova

Clothing is one of the most essential requirements of civilised existence. Yet differently-abled individuals and senior citizens, suffering from age-related and mobility issues, often struggle to adjust to conventional clothing. Keeping the community's distinct clothing needs in mind, a number of brands have globally begun to explore the domain of adaptive clothing. Here are a few labels in India that are taking part in the movement.

6 DOTS by Parul Sachdeva

A student of Pearl Academy Delhi, Parul’s inclination towards working for the visually disabled led her to develop 6 DOTS, a clothing line that keeps the specific needs of those in mind who cannot experience clothing by sight. Combining tactile qualities with specific cuts and tailoring, she has put together design that are both sensible and wearable.
“Earlier, I’d developed tactile surfaces using cord,” she says. “More recently, I have used wrinkle-free fabrics and emphasized on features like (textured) pockets—the pockets are also bigger because the wearers often have to keep their walking sticks inside. I also use the 2x1 method—for example, if there are two pockets in front, there will be one in the back. It saves people time in figuring out which is the front side and which is the back.”
Parul has also designed her most recent capsule in a way that each garment can be effortlessly paired with the other. Additionally, the label also incorporates simple features like Braille tags to enable wearers to know more about their garments. 6 DOTS was showcased at Amazon India Fashion Week earlier this month, and Parul’s designs have also been applauded at incubation and seed support competitions like Amity University’s B-Plan. “I hope to take this brand further,” she says. To get in touch with Parul, click here.

Cocoon, Old is Gold

Image source: Facebook Based in Chennai, Old is Gold caters to the needs of the elderly and have also launched what is claimed to be India’s first e-commerce site exclusively or senior citizens. Among a host of products, they have also launched Cocoon a limited range of adaptive clothing for individuals with special needs.
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Prioritising on comfort, the label has started with nightwear for women. Traditional nightwear can restrict movement, especially for women who face movement or dexterity issues or need help in wearing their clothes, but a simple open-shouldered design enables them to dress with ease. Available in bright colours and prints, the label also maintains reasonable prices for these products. Buy Cocoon products on the Old is Gold website.

Move Ability Clothing (MAC)

Image source: Facebook Based in Kottayam, Murielle and Joe Ikareth are helming a steady movement towards inclusivity and fostering empathy and understanding for people with special needs. “Move Ability is our dream towards achieving acceptance,” says Murielle. Highlighting the community’s need to be seen as more than just disabled, she adds, “We don’t work with the disabled — just people.” While Murielle leads inclusive movement therapy initiatives, Joe is a fashion designer who uses the Move Ability label to offer garment and accessories for the differently-abled. Murielle stresses that their approach is towards adaptive, moulding clothing according to the specific needs of the wearers.
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As a small, independent initiative, Murielle emphasizes on the need for outreach. “It is very difficult to reach out to the community,” she says, recalling a recent incident when she placed an advertisement for an assistant—preferably differently-abled—but received no response.
“I am planning to employ someone local to help me communicate about the project and bring it forward. The next phase is to develop awareness and well-being programs at various levels—education, health centres as well as corporate... In the present context of fear, judgment, hatred, more than ever, each one of us have a duty to spread respect, tolerance and care towards each other.”
Check out Move Ability designs on the brand's website. To get in touch with Murielle, click here. The demand for adaptive clothing in India far exceeds supply. It is a situation that these labels and designers are striving to address. It will be a heartening change for the differently-abled community to have greater access to initiatives, which take their needs into consideration and offer practical solutions.

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This Unique Crafts Village in Kerala Sets an Example of How Tourism Can Help Rural Artisans

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How does a young person, who is born deaf and dumb communicate his feelings? How does he express his artistic skills? More so for a young person whose parents are coolies and uneducated. How do they raise such a child? It is a very difficult question, particularly to most of us, who do not have this disability. There are so many questions to it. But when we see A K Arun at his art, all questions cease to exist. Shri A K Arun was born on April 10, 1987, (29 years) at Villiappally (Vadakara) in Kozikode District of Kerala to parents who were very poor. He was born deaf and dumb and perhaps the parents gave up even trying for his treatment. Despite such disability, he attended the Rotary Special School, Vadakara and completed his SSC. He was interested in fine arts like drawing, painting etc., and somehow managed to join the Kerala School of Arts, Thalassery, and completed the Kerala Government Certificate Examination in Fine Arts.

His heart and skill lay in painting and sculpting. As a freelance artist he earned around Rs. 2,500/- per month. But his fortune changed when he was identified by the CEO and other staff of Sargaalaya.

Sargaalaya is a unique tourist destination, a soothing experience for every visitor. Sargaalaya Kerala Arts and Crafts village is an initiative of Department of Tourism, Govt. of Kerala. It was established at Iringal, Kozikode district and inaugurated on February 19, 2011 as a part of responsible tourism project in 20 acres of land on the banks of Moorad River, close to National Highway in Iringal, Kozhikode. Started as a venture for the development of Traditional Arts and Crafts of India, with specific focus on Kerala, this has become one of the major tourist attractions of Kerala. Along with international travellers, 2.9 lakh people visited the spot last year. Sargaalaya has been awarded India’s Best Rural Tourism Project by the Ministry of Tourism, Govt. of India. The project is managed by the Uralungal Labour Contract Co-operative Society Ltd. The craft village is a cluster of skilled artisans - a group that makes majestic craft pieces and another group that performs the traditional art forms. Visitors to the Crafts village are encouraged to interact and learn from these talented artisans. There are 27 cottages in the craft villages where more than 60 varieties of crafts are made by hand. With the rare combination of art and tourism, the village paves a platform for the development of traditional artisans. The whole traditional industry of Arts and Handicrafts is getting boosted with ample opportunity for sale of their products and they are given brand protection as well. The large number of art lovers and tourists can witness live display of craftsmanship.

Sargaalaya conducts a two-week Annual Arts and Crafts Festival during last week of December every year.

Ministry of Tourism, Govt. of India, Dept. of Tourism, Govt. of Kerala and NABARD, SZCC, Thanjavur are supporting Sargaalaya for the Sargaalaya International Arts and Crafts Festival. It is at Sargaalaya that Arun honed his skills. He participated in the Puthukotta-style terracotta workshop, which was organized at Sargaalaya during May 2015. Arun had the opportunity to experience the making and moulding of the unique terracotta sculptures. Through such workshops and other training programmes, Arun got the necessary exposure to different techniques of Fired Clay Sculptures, detailed training on techniques involved in making Terracotta Crafts and he got opportunities to interact with senior artists and sculptors. His sculptures of birds, animals etc., are drawn from nature and are extremely realistic. Thanks to the dedicated team of Sargaalaya, raw material for all the 60+ artisans, including Arun is arranged by Sargaalaya and marketing is also taken care of by the organization. Arun has been provided a separate stall with all facilities and given full freedom to pursue his craft. He is now earning around Rs.20,000 per month, and is also provided housing at Sargaalaya. The artisan is grateful to Sargaalaya for the opportunity. The ideal combination of Sargaalaya and the artisans is a win-win situation for both. Sargaalaya provides the infrastructure, raw material, stay arrangements, training inputs, marketing platform and the artisans blissfully create their craft in a serene atmosphere. For the visitor, it is an amazing experience to witness first-hand the skill of such renowned artisans. Let us hope such initiatives are replicated elsewhere. Know more about Sargaalaya here. (Written by K.L Vinaya)

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Over 1,800 Hearing-Impaired Persons Have Found Employment Thanks to This NGO

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Deaf Enabled Foundation (DEF), an organisation “by the deaf, and for the deaf”, is providing vocational skills to the hearing impaired.
"There are so many of us who are interested in foreign cultures, and learn a foreign language. However, nobody from the hearing-enabled world even thinks of learning the sign language. Why is that so?” asks Ramya Miralya, vice president of Deaf Enabled Foundation.
Her questions ring out loud as she speaks about the hearing-impaired community, their stresses and struggles, the frustration that comes from not being able to communicate with the world and much more.

Deaf Enabled Foundation (DEF), founded by TKM Sandeep and Hari Hara Kumar who are hearing impaired themselves, tries to help hearing-impaired persons acquire certain life as well as vocational skills.

[caption id="attachment_92828" align="aligncenter" width="960"] Ramya and Hari Hara Kumar conducting a session at DEF[/caption] It is extremely stressful for the hearing impaired to search for and find employment. Specialised education for people with disabilities is still limited to certain pockets in India and therefore, many basic skills that other children acquire in schools at a young age, like operating computers, basic knowledge of English as well as general knowledge, hearing-impaired persons don’t get a chance to acquire. DEF conducts free-of-cost, three-month workshops for the hearing impaired, which include basic computer skills, English language skills, general knowledge, workplace readiness and training in Indian Sign Language.
“We focus on teaching them Indian Sign Language because it is the standard language. Sign language differs in different regions of India. Sometimes, hearing impaired persons never get an opportunity to learn sign language. Also, we ensure that their English language skills are up to the mark with different written assignments,” explains Ramya.
Being the only hearing enabled person in her family, Ramya saw the challenges her sister and parents faced on a day-to-day basis. Since she knew sign language, she started going to different events as an interpreter for hearing-impaired persons. That is when she met Hari and Sandeep, who were associated with different organisations for the hearing impaired.
Also read: Speech and Hearing Impaired Individuals Run the Show at This Mumbai Restaurant!
“When I started working as an interpreter, I realised that they are highly intelligent and they possess a different sensibility that makes them different. Perhaps, it’s life’s experience that makes them so wise. Sadly, there’s hardly ever a way to communicate with the ‘hearing world’. There had to be a way for them to integrate with the rest of society,” she says.
DEF started functioning in 2009 in Hyderabad and has since expanded to different places like Chennai, Vijayawada, Thanjavur, Visakhapatnam, Puducherry, Trichy, Mumbai, and Indore. The organisation not only provides vocational skills training, but also helps the candidates find a suitable job. The organisation has tie-ups with corporate firms to ease the hiring process.

More than 1,800 hearing-impaired students have been placed in different companies or are self-employed, thanks to DEF.

[caption id="attachment_92830" align="aligncenter" width="960"] Computer training classes at DEF[/caption]
“It’s not about creating sympathy, but it’s part of their business development. It is required for the companies to be more inclusive, more open in their hiring approach. Plus, every candidate still has to prove their worth, like anybody else, to get hired,” says Ramya.
While the idea behind DEF is to help the hearing impaired realise their potential and utilise their education, the organisation is also working towards bridging the gap between the hearing-impaired community and the hearing enabled. Through CSR programmes, DEF conducts sign-language classes for the hearing enabled. DEF volunteers also conduct rallies to spread awareness, and try to include the hearing enabled in their activities.
“The right to the freedom of expression is a human right, isn’t it? So why shouldn’t it be considered so for the hearing impaired? They too have the right to communicate, the right to live a dignified life, the right to earn their own living. It’s not charity, we are just trying to ensure that they get their rights,” concludes Ramya.

Also read: 2,800 Individuals with Disabilities Now Have Jobs and Financial Security. Thanks to One Initiative.
To know more about Deaf Enabled Foundation, visit their website here, and official Facebook page here.

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Beyond the Call of Duty: Differently-Abled Commissioner Goes Door-To-Door to Collect Taxes

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A R Pappammal, has spent a lifetime in public service. The municipal commissioner of the Manaparai, a town in Tiruchirappalli district of Tamil Nadu, she has only a year of service left until she retires. And she has also dealt with disability nearly all her life having been afflicted with polio as a child. But none of that is stopping this determined woman from personally making door-to-door calls to the constituents of the municipality encouraging them to pay their tax dues. For Pappammal, it is a matter of ensuring that she is able to uphold her duty and meet her targets. Since four of the district tax collectors are currently not on duty on account of varied illnesses, the collection for the year has stood at 67%.

Thus, she along with her team, are working overtime to bring the numbers up in a short span of time.

Image for representation. Photo source: Flickr Speaking to Times of India, she noted that aggressive measures were being taken to reach out to as many people as possible. Shrugging her own disability, the public servant who has worked for 31 years, said that the municipality has taken to public address system to request, cajole and beseech everyone to come forward on their own accord.
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Her own efforts in personally going to people's houses has found some amount of success according to Pappammal. She says, "Some of them agree to pay on the spot after identifying me but some still offer excuses to postpone even after waiting for a whole year." Inspired by the tireless efforts of their leader, the team members have also vouched to better their results from last year.

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This 57-Year-Old is Teaching Children with Disabilities to Swim. Free of Cost.

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Rajini Lakka, a 57-year-old woman from Ballari offers children with disability free swimming lessons,  while also helping them excel at several state- and national-level tournaments.
"Persons with disability want the world to treat them like people, and not like ‘disabled’ people. Instead of assuming that persons with disability cannot do certain things like excel at sports or be fashionable or go on a road trip, if one makes way for them to do all that they want to, that is treating them like a person,” says 57-year-old Rajini Lakka, a beautician-turned-swimming coach for children with disability.

The Ballari-based swimmer trains children with disability in swimming and encourages as well as assists them to participate in different paralympic tournaments across the country.

Rajini, who got married when she was 16, had never had a chance to learn swimming until recently. It was in 2005, when a new pool opened in her locality that her dormant wish to learn swimming awoke.
“I was always busy with the household, children and my parlour. There was no time. But now that my children have grown up, I decided to realise my childhood dream. I was an athlete in school and participated in javelin and shot put competitions. Even my husband encouraged me when I told him about it,” she said.
A born athlete and a natural at swimming, Ranjini soon started participating in tournaments and won several medals. From swimming, she turned to coaching. Her first stint at teaching children with disabilities happened when she was approached by volunteers at Round Table India. Ranjini agreed readily and decided that she wouldn’t charge a fee for the classes.
Also read: Disabled People Cannot Go on Adventurous Road Trips? This Web Series Could Prove Otherwise
“Most of the parents of these kids are poor. I wanted to boost their morale and show them that they too can do it,” says Ranjini.
She has secured level 1, 2 and 3 coaching certificates from the American Swimming Coaches Association as well as a certificate from the Canadian Red Cross Course. Since the past three years, she has been coaching 12 children with different disabilities- physical, mental as well as the visually, hearing and speech impaired. She prepares them for state- and national-level swimming competitions.

One of her students, Gopichand, lost his legs, but thanks to Rajini’s coaching, he has mastered 200m freestyle and 200m backstroke.

[caption id="attachment_92990" align="aligncenter" width="1280"] Rajini teaching backstroke to Gopichand[/caption] “It feels awesome to be able to swim. I love being in water. I am now learning backstroke and butterfly stroke,” says Gopichand.
When asked about whether she uses specific methods of training according to every child’s needs, Rajini smiles and says, “Yes. It is the most important aspect of training children with disability. Each child needs to be trained in a different way. I have also found that when I use simple, positive language, it keeps them going. I make sure that I am with them during every tournament to encourage them to swim fast and motivate them to win medals. Swimming helps their overall development, that’s for sure.”
The results of her dedication and hard work have been beyond positive. Her students have won medals in different competitions at the state as well as the national levels.
Also read: Over 1,800 Hearing-Impaired Persons Have Found Employment Thanks to This NGO
“Last year, my students won 11 medals at the State Championship and 2 medals at the National Championship. This was a very proud moment for me. In addition, a hearing-impaired child won a medal in the National Open Championship. This year, they have brought home 21 medals. This is such a morale boost not only for the children, but for me as well,” she says.
A token of appreciation has come her way from the district administration as well. She is now allowed to use the government swimming pool at the District Stadium to train the children. Happy with the results of her hard work, Rajini has now taken on four new students and trains them every day.
“There are many children who need this kind of support. There are not enough special schools with facilities to train children in sports. I feel that the government needs to pay attention to these facts and make sports training accessible to children with disability,” concludes Rajini.

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A Bengaluru Couple Uses Cake to Spread Awareness About Special Needs Individuals Across 10 Countries

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In 2016, statistics suggested that one in every 100 children in India has autism. The numbers are only likely to increase in time, and autism is being regarded as no less than an epidemic. Yet, due to lack of awareness, disorders like autism and Down syndrome are commonly treated with stigma and special needs individuals are often subjected to harassment for their inability to react ‘normally’ in public places and situations.

Geetha VM and her husband Rathish P Subramaniam aim to change mindsets and sensitise people to the needs of special children (and adults) with their #supporticon campaign.

Geetha and her son, Om The campaign comes from the couple’s personal experience with their son Om, now seven years old, who has autism spectrum disorder. “It is a sensory processing disorder, so for instance, what is soothing flute music for me in a restaurant can cause him great distress,” says Geetha, who quit her job to take care of her son. She confesses to entering a long stage of depression, guilt and blame. “It took us almost a year, but we finally enjoy life as it is.” Determined to expose their child to a conventional upbringing, Geetha and Rathish began to take Om on outings and weekend excursions. Friends and family members also played an important part, bringing their kids to play with Om. But there were many hiccups too. “One time, a woman walked up to me and said ‘Please mother your child better’. I was angry, because it wasn’t because I managed things badly or I was a bad mother.” Such episodes made Geetha both angry and sad, but the couple decided to face the situation with dignity.
“We thought — let’s start educating society. We will be open about our lives and Om. If I saw someone staring at us, I’d walk up to them and talk about my child. Wonderfully, most people understood. They started with sympathy but gradually made way for empathy and understanding.”

The Support Icon campaign — conceptualised and launched by Rathish — emerged from their desire to spread awareness on such disorders.

[embedvideo id="KE_uT6PtJCo" website="youtube"] The Support Icon logo is depicted by two smileys leaning on each other, implying the support each one of us needs in life. A two-toned ribbon wraps the two smileys, acting as a connection between people. The need for support — from parents, friends and peers — is universal, and Geetha and Rathish aim to bring to the world’s attention that special needs individuals are no different. Though Geetha was concerned about how they would make the campaign popular, Rathish emphasized that this wasn’t a campaign for short-term goals. She says, “He was clear that we want genuine support.” Fully aware that it would be hard, the duo launched the campaign with a video conceptualised and directed by Rathish.
“I thought funds would be the difficult part, but we raised the money quickly and many of those who worked on the video didn’t even charge anything,” says Geetha. “But the parents turned out to be apprehensive about having their children on video. Fortunately Mrs. Santhi Karamcheti, the principal of Edventure Academy (where Om studies) who is very dedicated to special children, offered her help. She called us to the school where I made a presentation and we finally made the video, which we launched on World Disability Day.”
The video initially received popularity among those who were part of the special needs community. Hoping to spread the word further, Geetha approached her friend Mary Ann George, a cake artist, to bake a cake with the logo. Mary took charge, not only making a cake herself but getting other members of the Indian Cake Artists Association to participate too.

The cake baking challenge launched #baketosupport campaign, inviting people to bake a cake and gift it to a special needs individual in their community.

Mary Ann George (extreme left) and other participants of the #baketosupport challenge In just three weeks, 100 bakers — a mix of professionals, home chefs, junior bakers and cake artistes — made cakes to participate in the campaign. The bakers came from not just around India, but other countries too. Geetha help campaign participants in reaching out to special needs individuals or organisations in their vicinity.
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According to Geetha, the campaign has also encouraged 20 volunteers to launch bigger projects: from a Coimbatore resident who is organising a vocational course in baking to a volunteer in Chennai who has offered to teach board games to special needs individuals. Remya Dharmarajan, another volunteer for #baketosupport, and mother to a special needs child, designed customised templates for all the cake submissions. They have also showcased dummy cakes at many companies in Bengaluru, introducing a few thousand employees to disorders like autism and Down syndrome.

As the #baketosupport campaign has gained momentum, Geetha and Rathish have extended it to last through the month of April, which is also World Autism Month.

Bakers, from Kolkata to Malaysia, participate in the #baketosupport campaign Encouraging participants to share their cake photos with hashtags on social media pages, the campaign aims to create widespread awareness for special needs individual. “We need people to come forward and spend time with the children” says Geetha, recalling stories of how the campaign has brought smiles on the faces of many a special child.
You might also like: This 57-Year-Old Is Teaching Children With Disabilities to Swim. Free of Cost
Ultimately, the aim of the campaign is to make people understand that the apparent difference between ‘normal’ and special needs people is really a matter of perspective. Rising above stigma and lack of awareness, Geetha and Rathish hope to bring about a change in societal outlook and its approach towards children and adults with special needs. As the couple says, “Research has proved that children who grow up with special needs children grow up into fine adults with values such as empathy, respect, care and love. We thought the society was arrogant but realised they were just ignorant. So we started this small journey to transform souls into understanding special needs children.” Check out the Support Icon campaign page on Facebook. To get in touch with Geetha, click here.

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TBI Blogs: The Inspiring Journey of Polio Survivor and India’s “Pele of Percussion”, Ghatam Suresh Vaidyanathan

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A polio survivor who lives life on his own terms, Ghatam Suresh Vaidyanathan has created a career and legacy for himself that far surpasses many others in his field. This Carnatic music virtuoso has been called the ‘Pele of Percussion’ in honour of his prodigal skills.

Born into a family of musicians, Ghatam Suresh Vaidyanathan is now a legend in his own right. Known for his flawless technique and unique style, today, his talents are in demand all over the world. Whether it’s playing for Carnatic music lovers in India, or collaborating with an orchestra in Australia, he has made a name for himself as a true musician.

Keeping It In The Family

Though all the children in the family were exposed to music, Suresh says that he and his elder brother, Rajasekar, were the only ones who wanted to take it up seriously. Rajasekar would escort him to the music school, and eventually he got trained himself. He reminisces, “I used to keep hitting whatever was nearby with my hands, like small boxes and small utensils.” His grandfather, a musician at heart though not by profession, saw the potential in his grandsons, and took them to a nearby music school to continue their education. His teacher, T.R. Harihara Sharma, the father of renowned musician Vikku Vinayakram, helped shape his path. Vikku Vinayakram, on noticing his deep love for ghatam, gave Suresh his first taste of being a performer by inviting him to play the ghatam during his performances.
He reminisces, “Vikku Vinayakram took me on as his special student and taught me all the intricate nuances of ghatam with passion. I have shared the stage with him only on a couple of occasions in the recent past, where he openly appreciated my achievements.”
Bolstered by his support, Suresh became more determined to take music seriously. The turning point was when an uncle who had watched him play told his father to take him to see TV Gopalakrishnan. It paid off, and at the age of 13, he began learning from the great innovator. The Government of India granted him a scholarship to pursue his musical education further. But it was under TV Gopalakrishnan’s tutelage that he would meet and rub shoulders with the top musicians of that time.

His teacher also taught him the ins and outs of the music world.

[caption id="attachment_93118" align="aligncenter" width="5472"]Ghatam Suresh Vaidyanathan Ghatam Suresh Vaidyanathan during a performance.[/caption]
Suresh says, “Mr. TV Gopalakrishnan used to take me with him all around India to play, and that gave me a platform and the boost I needed to become a more vibrant ghatam player. That was the beginning of my career.”

Overcoming Polio And Finding Happiness

Though his family was filled with musicians, no one had considered that Suresh could go professional. A Polio survivor, one of his legs was shorter than the other, which was a source of concern for his parents. He explains, “My father was more concerned about my studies and my health, and getting surgeries done for my Polio.” A pragmatic man, Suresh’s father was unsure about encouraging his son to take up music full-time.
Suresh says, “My parents were never for me being a professional musician for two reasons. First, because the music profession is not easy or permanent, and there is no regular income. The second is that they thought that I would always need someone to support me, take me around, and help me move my instruments, because of my disability.”
He admits that he can’t blame them, “When I used to play concerts when I was a teen, and even in my 20s, they would come with me wherever I went. My father would carry my instruments, and sometimes even me.” When he was diagnosed with Polio as a child, his mother was his biggest motivator. “Right from the day I was struck with Polio, she was the person who motivated me. She told me, ‘You can sit, you can stand up. You can walk. Don’t worry if you’re limping, there are so many people who don’t have legs of the same size.’ She didn’t have a medical or psychiatric background, but she was doing it as my mother, and helped me overcome whatever depression I felt,” Suresh confides.
[caption id="attachment_93119" align="aligncenter" width="500"]Ghatam Suresh Vaidyanathan Ghatam Suresh Vaidyanathan with his favoured instrument.[/caption]

The Path To Professional Music

Suresh’s father encouraged him to find a desk job, and he was soon on his way to Delhi to begin his career. However, the lure of concerts was stronger. Suresh quit his job in the capital and returned to Chennai because of the expansive music scene. After working for some time in LIC, and finding love along the way, Suresh found himself longing to pursue music as a profession. After talking to his wife, Suresh gave up his 9-to-5 job and dedicated himself to the ghatam. He says, “She told me to follow my passion, and that whatever comes, we’d face it.” His musical career was already in full swing, and he was in demand as a concert player, both in India and abroad. Suresh believes that musicians have a responsibility to themselves as well as to their audiences.
He says, “I had covered almost the whole country, but that was not enough. To be a percussionist, you have to be a learner and an optimum performer. It’s not enough if your calendar is filled and you become more and more busy and perform in different places. At one point, I thought, ‘I should be looked upon as a musician of accomplishment.’”
Suresh said he began considering factors he had not explored before like, “Which stage would give me the most exposure? Where could I play my best? Which artists would give me the motivation and room to play?”

Looking Back: Putting Things In Perspective

[caption id="attachment_93116" align="aligncenter" width="5472"]Ghatam Suresh Vaidyanathan A Ghatam Suresh Vaidyanathan performance.[/caption] Almost two decades later, Suresh believes he made the right choice. He says, “The younger generation look to me as someone who can guide them with just one performance.” At a recent performance, he was thrilled to see a band of young musicians who admired his work and waited to meet him after the show. He says, “All this is possible only because I was able to work more on the technical side, and now I’m being celebrated as someone who has revolutionized ghatam techniques.” He credits his success to Vinayakram and his other guru, Narayanaswamy Iyer. Both his teachers had distinct styles which influenced his playing, and have helped to mould his skills. Today, Suresh has his own students who are influenced by his unmistakable style. He says, proudly, “Now, when people hear them playing, they can say, ‘They’re following Ghatam Suresh.’ This is what I would call my humble achievement.”

Changing Attitudes Toward Disabilities

Though his career has been a successful one, Suresh did face challenges. He remembers, “If someone says, ‘This guy is not good, he doesn’t play well, his attitude is bad’, that’s acceptable. But if someone says, ‘This guy has a disability, don’t depend on him. He’ll be troublesome to take on a tour’, that’s totally unethical.” He found that many people used his disability as an excuse to ignore his talent, and it made him all the more determined to overcome the challenge.
“I decided that people should look at me and see only my performance, not my appearance. I’ve never asked a co-musician to help me carry my instrument, or even climb the stairs. I can do my job independently,” Suresh says with quiet confidence.
These days, Suresh plays with a lot of Western musicians, and he says that their attitudes are very different. He says, “The first time they meet me, it’s a little bit of a shock for them. But then there are no more thoughts or questions about it, which I think is a big success for a person who has an issue which was never his choice.”
Suresh feels, “The attitude change in India is more visible, because Westerners don’t care about how a person dresses or what he looks like. I’ve always told my co-musicians that I require no special treatment, but should receive respect for my achievements.”
Ghatam Suresh is one of India’s foremost musical talents today. He has come a long way from playing his first Carnatic-Jazz concert with his guru alongside then-new-arrival AR Rahman. With collaborations with musical giants under his belt, Ghatam Suresh Vaidyanathan is a force to reckon with, and he did it all his own way. Originally published on KnowYourStar. Visit our website for more such articles, or hop by our Facebook page for daily inspiration.

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She Lost Her Eyesight at 22. Yet, she helps 10 Underprivileged Women Earn a Living!

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Radhika Kavathkar, who lost her vision at the age of 22 to an undiagnosed complication, has not only made herself independent, but has helped over 10 women earn a living by founding a self-help group. "Please come inside Aditi, give me 10 minutes to finish this and I’ll be right with you,” she says even before I could announce my arrival. I oblige and take my seat in the corner as I observe her at work. Tall, slender and quick, she is working fast at the paper folding machine. Within 10 minutes, she finishes the bunch of wedding cards next to her as promised and comes to sit next to me. Her name is Radhika Kavathkar. As I am observing the little shop and the things kept in there, she sets two cups on the table and fills them with tea from the thermos. Then she leaves the shop and returns in five minutes with a packet of biscuits in her hands.

She sets the packet down on the table and smiling, asks me what I want to know.

[caption id="attachment_93348" align="aligncenter" width="500"] Radhika Kavathkar[/caption]   I go silent, rewording my questions in my mind. For the past 15 minutes, I have seen this woman break all the stereotypes about being a visually impaired person. She is an entrepreneur, a social leader and an independent woman. That’s her only identity that I have seen so far. Sensing my silence, she takes the conversation in her own hands.
“It is a new business. I only bought this machine a month ago and I am still trying to find a steady customer base. But I am sure I will get more orders with time,” she informs.
“And what were you doing before that?” I inquire. Forty-year-old Radhika worked for over 10 years in a machine repair shop in Pune. She got the job through an acquaintance and confesses that she had a hard time convincing the owner that she could do it. The shop worked with machines like paper cutting machines and the job also required the ability to operate the machines besides repairing them. The nature of the work was rather dangerous for someone with visual impairment and the owner didn’t want to risk it. Finally, when Radhika took the entire responsibility in case some accident happened, she was allowed to work.
“It took me a bit longer to get used to the machines. But after about 15 days, I was a pro! I can repair this machine and any similar machine for that matter, in no time, you know,” she says, pointing towards the paper folding machine that stands in the corner.

Also read: Cancer Robbed Her of Her Eyesight. But Not of Her Dream to Become an IAS Officer!
Radhika lost her vision to an undiagnosed complication that occurred during her pregnancy. Born in a middle class family in Pune, she got married at the age of 19. For the sake of marriage, she had to leave her education after completing second year of BA. It was during her pregnancy that she started having some trouble with her vision.
“It wasn’t very noticeable at the beginning. I thought it was because of the stress or that I needed spectacles! My entire focus was on the baby to come and therefore I didn’t pay much attention to the vision issue. I was still able to see after the birth of my daughter, but then the rate at which my vision was fading increased and within a few months, I couldn’t see anything,” recalls Radhika.
It was a sudden challenge for her. Having lived her whole life with perfect vision, it took her a long time to adjust to the new reality of her life. The bigger blow came when her husband decided to separate from her. Radhika was back to her parents’ home with her newborn, struggling for direction.
“I didn’t know what to do. I searched a lot for a job before I started to work at the machine repair shop. Nobody was ready to employ me, even when I wasn’t expecting any favours. I just wanted to work- I was ready to toil and earn my bread,” she says.
She worked at a jewellery shop, in a PR agency as well as in the sales department of a company before landing the job at the machine repair shop. An acquaintance of hers, Mrs Kadekar, once suggested she turn her talent of making pickles into a business.

Radhika readily brought together ten women from her neighbourhood who were in need of money and formed a self-help group called Swami Samartha Bachat Gat.

“All of these women were my acquaintances- most of them were working as domestic help in the neighbourhood. I taught them my pickle recipes and started selling these homemade pickles. We’d also sell different items of Vaalvan like kurdai, papdi, mirgund and sandge (the Maharashtrian variants of fryums). Our Bachat Gat recently completed its second cycle of 10 years and was resolved. In June, we’ll be starting with the third cycle and this time, we will also start making some textile items like quilts and cloth bags along with pickles,” says Radhika.
When I ask about her dreams, she smiles and informs me that there are many. A natural at cooking, she wants to start her own catering business with the help of the Bachat Gat members. She also wants to involve them in her current business of selling packed chopped veggies and develop a self-sufficient enterprise out of it.
Also read: This 57-Year-Old is Teaching Children with Disabilities to Swim. Free of Cost.
“I feel that everyone goes through some or the other trouble. Someone has an alcoholic husband, while some other girl has abusive in-laws. Problems truly are unending. What matters is how you deal with them, isn’t it? I tell anyone who comes to me with their domestic problems- don’t cry, make yourself stronger. Become financially independent and stand your own ground,” she says.
At this point, Sangita, who helps Radhika run the veggies business enters with a load of vegetables and sets it all on the floor. Radhika gets up quickly, settles down on the floor and starts chopping the vegetables with the same ease and quickness that she worked with on the paper folding machine. As I say goodbye and walk out of her shop, I am quite sure of how an empowered woman looks!

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